What is NCI-AD?

Establish in 2015, National Core Indicators—Aging and Disabilities™ (NCI-AD™) is a voluntary effort by state aging and physical disability agencies to measure and track their performance using a standardized set of nationally validated measures. The effort is coordinated by Advancing States and Human Services Research Institute (HSRI). Learn more about our history here.

In 2021-22 a total of 19 states participated in NCI-AD. Not all participating states do all surveys every year.

What is the NCI-AD
Adult Consumer Survey?

The NCI-AD Adult Consumer Survey (ACS), is standardized survey conducted with a person receiving long term services and supports (LTSS) through state aging and physical disability systems. Surveys are conducted by trained surveyors through in-person, secure video meeting, or over-the-phone conversations with service participants. The main part of the survey contains subjective questions about how well services are supporting the person; these can only be answered by the person themselves. A subset of more objective questions may be answered by a proxy respondent if needed. In addition to the questions for service participants, the survey also collects background information on the person –demographic and service-related data – mainly from service agency records. In 2021-22, the survey included two state-optional modules:

Person-Centered Planning Module. This is a series of questions that ask about the person-centered planning process, including the person’s experience developing the service plan and the service planning meeting. The following states conducted the Person-Centered Planning Module: CO, DE, GA, IN, KS, MI, MN, MO, NJ, OK, TX, WA, WI.

COVID-19 Supplement. This included a series of questions of the person’s experience with services during COVID-19 and the overall impact of the pandemic on the person’s life. The following states conducted the COVID-19 Supplement: CO, DE, GA, IN, KS, MI, MN, MO, NJ, OK, TX, WA, WI.

Sampling

There is considerable variation in how states’ long-term services and supports (LTSS) programs serving older adults and adults with physical disabilities are organized, funded, and administered. The NCI-AD program allows states to include programs funded through Medicaid, the Older Americans Act, Program of All-Inclusive Care for the Elderly (PACE), state-only funds, and/or other state- and federal-blended funds. The NCI-AD project team works closely with each participating NCI-AD state to advise and track which LTSS program populations and sub-populations are included in the state’s sampling strategy, how that sample is designed and how many surveys are targeted for completion. See detailed information on state sample frames here.

Missouri Specific Sample

Total Sample Frame: 71868

Total surveys completed: 2028

Overall Margin of Error 2.15%

Program Category

Table 1. Classification of 2021-22 State programs

STATE Program Funding Source Description of Program Total Population Eligible for NCI-AD Total Usable Surveys Collected MoE (95%Confidence, 0.5 Distribution) MoE (95%Confidence, 0.7 Distribution)
MO Consumer Directed Services Medicaid (Title XIX of the Social Security Act) through MO HealthNet Division (MHD); and General Revenue (GR) through the DHSS/DSDS State Plan Personal Care, which includes but is not limited to: personal Care, toileting, health, housekeeping, meals, and transportation 38507 383 5.01% 4.59%
MO Independent Living Waiver Medicaid 1915 (c) Waiver Independent Living Waiver (ILW) – this program offers additional services beyond the limitations of the Consumer Directed State Plan Personal Care program to a limited number of eligible consumers. ILW services include case management, personal care, environmental accessibility adaptations and specialized medical equipment and supplies. 674 238 6.35% 5.82%
MO Personal Care – Agency Model State general revenue and/or Medicaid 1915 (c) Waiver Personal Care - (Agency Model) (PC) services are generally medically oriented tasks provided as an alternative to nursing facility care, and designed to meet the maintenance needs of individuals with chronic health conditions. PC services must be reasonable according to the condition and functional capacity of the participant. 11118 375 5.06% 4.64%
MO Aged and Disabled Waiver Medicaid 1915 (c) Waiver Older adults above age 65, and individuals with physical disabilities ages 63-64. 15883 367 5.12% 4.69%
MO Adult Day Care Waiver Medicaid 1915 (c) Waiver Individuals with physical and other disabilities ages 18-63 years. 1602 311 5.56% 5.09%
MO Residential Care Facility / Assisted Living Facility State general revenue and/or Medicaid 1915 (c) Waiver Personal Care (PC) services are maintenance services provided to residents of Residential Care Facilities (RCF) or Assisted Living Facilities (ALF) to assist with activities of daily living (ADL). Services are authorized to eligible residents when the needs of the resident exceed the minimum obligations of the facility as established in the licensure requirements. 4909 354 5.21% 4.77%

What is included in this report?

This report presents Missouri 2021-22 ACS demographics and outcomes results. Data are shown for the overall statewide average, broken out by program sampled, and include the weighted NCI-AD Average.

Please note: Extreme caution should be used when interpreting results where the number of valid responses is small. Each program’s valid number of responses (valid Ns) is shown in every chart and table in this report.

To protect people’s privacy we do not show the data when 20 or fewer people from a state or within a program responded to a question, however their data are included in the overall state average.

Presentation of Data

Data may be viewed as bar charts or in tables by clicking the appropriate tab for each outcome. Data presented in charts are “collapsed” meaning that data grouped by response options to what is considered to reflect a positive outcome and all other responses. Tables represent the un-collapsed data outcomes.

All NCI-AD data are collapsed “yes” responses only, unless otherwise noted.

All state and NCI-AD averages throughout this report are “weighted” to account for any non-proportional sampling of programs and to “rebalance” the states’ sample sizes according to their populations of survey-eligible service recipients. See more details on weighting in Part II of this report.

Results

Demographics

Table 2. Average age (reported for those under 90 years old)

Program Age N
Consumer Directed Services 60.0 376
Independent Living Waiver 48.3 236
Personal Care – Agency Model 62.5 361
Aged and Disabled Waiver 73.0 343
Adult Day Care Waiver 45.3 310
Residential Care Facility / Assisted Living Facility 57.3 333
Overall State Average 62.6 1959
NCI-AD Weighted Average 66.8 12847

Table 3. Age Category (including those 90 and older)

Program 18-44 45-64 65-89 90+ N
Consumer Directed Services 11% 54% 35% 1% 379
Independent Living Waiver 39% 54% 6% 0% 237
Personal Care – Agency Model 12% 35% 49% 3% 372
Aged and Disabled Waiver 1% 7% 86% 5% 362
Adult Day Care Waiver 46% 52% 1% 0% 310
Residential Care Facility / Assisted Living Facility 20% 44% 33% 2% 340
Overall State Average 10% 40% 47% 2% 2000
NCI-AD Weighted Average 8% 27% 58% 6% 13593

Table 4. Gender

Program Male Female Other Don’t know or unclear N
Consumer Directed Services 32% 68% 0% 0% 383
Independent Living Waiver 49% 51% 0% 0% 237
Personal Care – Agency Model 33% 67% 0% 0% 373
Aged and Disabled Waiver 29% 71% 0% 0% 364
Adult Day Care Waiver 47% 53% 0% 0% 307
Residential Care Facility / Assisted Living Facility 52% 48% 0% 0% 346
Overall State Average 33% 67% 0% 0% 2010
NCI-AD Weighted Average 32% 68% 0% 0% 13595

Table 5. Race and ethnicity

Program American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other Don’t know Unclear/Refused/No Response N
Consumer Directed Services 1% 2% 48% 0% 42% 1% 1% 1% 6% 352
Independent Living Waiver 0% 1% 37% 0% 52% 1% 1% 0% 8% 221
Personal Care – Agency Model 3% 1% 30% 0% 60% 2% 2% 0% 4% 336
Aged and Disabled Waiver 1% 0% 35% 1% 57% 0% 2% 1% 6% 331
Adult Day Care Waiver 0% 0% 63% 0% 28% 0% 2% 1% 6% 265
Residential Care Facility / Assisted Living Facility 2% 1% 16% 0% 81% 3% 0% 1% 0% 270
Overall State Average 1% 1% 41% 0% 50% 1% 1% 1% 5% 1775
NCI-AD Weighted Average 2% 5% 23% 0% 60% 9% 2% 3% 2% 13134

Table 6. Marital Status

Program Single, never married Married or in domestic partnership Separated or divorced Widowed Don’t know or unclear N
Consumer Directed Services 42% 13% 27% 18% 0% 358
Independent Living Waiver 67% 6% 18% 9% 0% 224
Personal Care – Agency Model 37% 13% 28% 23% 0% 345
Aged and Disabled Waiver 25% 13% 32% 30% 0% 334
Adult Day Care Waiver 87% 3% 7% 3% 0% 293
Residential Care Facility / Assisted Living Facility 60% 2% 16% 10% 12% 336
Overall State Average 40% 12% 27% 20% 1% 1890
NCI-AD Weighted Average 28% 15% 27% 25% 4% 13114

Table 7. Preferred Language

Program English Spanish Other Don’t know or unclear N
Consumer Directed Services 96% 1% 4% 0% 367
Independent Living Waiver 99% 1% 0% 0% 229
Personal Care – Agency Model 97% 1% 3% 0% 349
Aged and Disabled Waiver 98% 0% 2% 0% 349
Adult Day Care Waiver 99% 0% 0% 0% 292
Residential Care Facility / Assisted Living Facility 100% 0% 0% 0% 338
Overall State Average 97% 0% 3% 0% 1924
NCI-AD Weighted Average 89% 4% 7% 0% 13409

Table 8. Residential Designation

Categories created using zip codes and corresponding RUCA codes

Program Metropolitan Micropolitan Rural Small Town N
Consumer Directed Services 70% 12% 9% 8% 328
Independent Living Waiver 74% 9% 6% 12% 199
Personal Care – Agency Model 55% 20% 9% 15% 318
Aged and Disabled Waiver 66% 14% 9% 11% 311
Adult Day Care Waiver 94% 2% 0% 2% 244
Residential Care Facility / Assisted Living Facility * 53% 26% 4% 9% 234
Overall State Average 67% 14% 9% 10% 1634
NCI-AD Weighted Average 72% 14% 6% 9% 13085

Table 9. Median Income (based on zip code)

Newly reported in 2021-2022

Program $0- $9,999 $10,000- $19,999 $20,000- $29,999 $30,000- $39,999 $40,000- $49,999 $50,000- $59,999 $60,000- $69,999 $70,000- $79,999 $80,000- $89,999 $90,000- $99,999 $100,000 and over N
Consumer Directed Services 0% 4% 17% 46% 18% 9% 4% 1% 1% 0% 1% 327
Independent Living Waiver 0% 4% 10% 46% 19% 10% 7% 5% 0% 0% 1% 198
Personal Care – Agency Model 0% 0% 13% 48% 19% 12% 4% 2% 1% 0% 1% 316
Aged and Disabled Waiver 0% 2% 14% 47% 16% 12% 3% 2% 4% 0% 0% 309
Adult Day Care Waiver 0% 3% 13% 47% 16% 15% 2% 2% 2% 1% 0% 243
Residential Care Facility / Assisted Living Facility * 0% 1% 2% 53% 33% 5% 4% 2% 0% 0% 0% 215
Overall State Average 0% 3% 15% 47% 18% 10% 4% 1% 1% 0% 0% 1608
NCI-AD Weighted Average 0% 1% 9% 27% 27% 16% 9% 5% 3% 1% 1% 12977

Table 10. Type of Residence

Program Own or family house or apartment Senior living apartment or complex Group home, adult family home, foster home, host home Assisted living facility, residential care facility Nursing facility, nursing home Homeless or temporary shelter Other Don’t know or unclear N
Consumer Directed Services 91% 7% 0% 1% 1% 0% 1% 0% 371
Independent Living Waiver 96% 4% 0% 0% 0% 0% 0% 0% 228
Personal Care – Agency Model 80% 16% 0% 1% 1% 0% 1% 0% 356
Aged and Disabled Waiver 78% 18% 1% 1% 1% 0% 1% 0% 348
Adult Day Care Waiver 91% 6% 1% 1% 0% 0% 1% 0% 297
Residential Care Facility / Assisted Living Facility 0% 3% 3% 93% 1% 0% 0% 0% 349
Overall State Average 81% 11% 0% 6% 1% 0% 1% 0% 1949
NCI-AD Weighted Average 76% 7% 2% 7% 6% 0% 2% 1% 13448

Table 11. Who the person lives with

Program No One – Lives Alone Spouse or Partner Other Family Friend(s) Live-in PCA Others Don’t know or unclear N
Consumer Directed Services 46% 12% 40% 3% 1% 1% 0% 373
Independent Living Waiver 33% 8% 53% 3% 3% 1% 0% 229
Personal Care – Agency Model 57% 11% 29% 2% 0% 1% 0% 358
Aged and Disabled Waiver 61% 9% 26% 1% 1% 1% 0% 350
Adult Day Care Waiver 34% 3% 60% 2% 1% 1% 0% 294
Residential Care Facility / Assisted Living Facility 27% 1% 1% 14% 9% 56% 0% 349
Overall State Average 49% 10% 33% 3% 2% 4% 0% 1953
NCI-AD Weighted Average 47% 13% 28% 2% 2% 9% 1% 13355

Table 12. Address Change

Program Yes No Don’t know or unclear N
Consumer Directed Services 7% 93% 0% 364
Independent Living Waiver 9% 91% 0% 225
Personal Care – Agency Model 6% 93% 0% 354
Aged and Disabled Waiver 6% 93% 1% 343
Adult Day Care Waiver 11% 89% 0% 296
Residential Care Facility / Assisted Living Facility 1% 98% 0% 343
Overall State Average 7% 93% 0% 1925
NCI-AD Weighted Average 6% 92% 2% 12980
Program No Yes N
Consumer Directed Services 93% 7% 363
Independent Living Waiver 91% 9% 225
Personal Care – Agency Model 93% 7% 353
Aged and Disabled Waiver 94% 6% 340
Adult Day Care Waiver 89% 11% 296
Residential Care Facility / Assisted Living Facility 99% 1% 342
Overall State Average 93% 7% 1919
NCI-AD Weighted Average 94% 6% 12752

Table 13. Where people moved from (if moved in the last 6 months)

Program Own or family house or apartment Senior living apartment or complex Group home, adult family home, foster home, host home Assisted living facility, residential care facility Nursing facility, nursing home Homeless or temporary shelter Other Don’t know or unclear N
Consumer Directed Services 67% 5% 5% 0% 0% 5% 19% 0% 21
Personal Care – Agency Model 62% 5% 0% 0% 14% 0% 14% 5% 21
Adult Day Care Waiver 81% 0% 0% 0% 0% 0% 19% 0% 26
Overall State Average 70% 4% 3% 2% 3% 3% 16% 1% 100
NCI-AD Weighted Average 63% 5% 4% 5% 5% 3% 14% 1% 689
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Aged and Disabled Waiver, Residential Care Facility / Assisted Living Facility

Table 14. Diagnoses

All categories except ‘physical disability’, ‘intellectual or other developmental disability’, and ’Alzheimer’s disease or other dementia are new in 2021-22. Categories are not mutually exclusive; therefore, N is not shown.

Program Physical Disability Traumatic brain injury or other acquired brain injury Intellectual or other developmental disability Alzheimer’s disease or dementia Heart Disease Cancer Chronic Obstructive pulmonary disease (COPD) Stroke Diabetes Hypertension (or high blood pressure
Consumer Directed Services 80% 8% 9% 4% 36% 12% 30% 21% 41% 69%
Independent Living Waiver 97% 18% 16% 2% 17% 11% 18% 15% 28% 39%
Personal Care – Agency Model 76% 11% 18% 6% 38% 17% 30% 21% 38% 66%
Aged and Disabled Waiver 71% 10% 6% 12% 38% 17% 35% 22% 42% 71%
Adult Day Care Waiver 65% 17% 53% 5% 18% 5% 11% 17% 23% 50%
Residential Care Facility / Assisted Living Facility 43% 11% 17% 5% 13% 9% 17% 11% 28% 37%
Overall State Average 75% 9% 11% 6% 35% 13% 30% 21% 39% 66%
NCI-AD Weighted Average 70% 11% 8% 11% 33% 12% 23% 20% 37% 60%

Table 15. Person has chronic psychiatric or mental health diagnosis

Program Yes No Don’t know or unclear N
Consumer Directed Services 33% 65% 1% 356
Independent Living Waiver 30% 69% 1% 227
Personal Care – Agency Model 39% 59% 2% 341
Aged and Disabled Waiver 29% 68% 3% 328
Adult Day Care Waiver 39% 60% 1% 285
Residential Care Facility / Assisted Living Facility 61% 35% 3% 322
Overall State Average 35% 63% 2% 1859
NCI-AD Weighted Average 35% 61% 3% 12828

Table 16. Level of Mobility

Categories are not mutually exclusive (except ‘Don’t know or unclear or unclear’).

Program Non-Ambulatory Moves self with wheelchair Moves self with other aids Moves self without aids Don’t know or unclear N
Consumer Directed Services 3% 15% 61% 37% 1% 368
Independent Living Waiver 16% 60% 31% 11% 0% 230
Personal Care – Agency Model 3% 25% 56% 35% 1% 358
Aged and Disabled Waiver 4% 20% 61% 34% 2% 346
Adult Day Care Waiver 2% 14% 32% 62% 0% 296
Residential Care Facility / Assisted Living Facility 1% 6% 26% 73% 1% 331
Overall State Average 3% 17% 58% 38% 1% 1929
NCI-AD Weighted Average 8% 21% 53% 27% 8% 13086

Table 17. Has history of frequent falls (more than two falls in a six-month period)

Program Yes No Don’t know or unclear N
Consumer Directed Services 35% 64% 1% 355
Independent Living Waiver 24% 76% 0% 228
Personal Care – Agency Model 34% 64% 3% 356
Aged and Disabled Waiver 40% 59% 1% 334
Adult Day Care Waiver 26% 74% 0% 292
Residential Care Facility / Assisted Living Facility 20% 78% 2% 324
Overall State Average 35% 64% 1% 1889
NCI-AD Weighted Average 28% 70% 1% 12866

Table 18. Receives Medicare

Program Yes No Don’t know or unclear N
Consumer Directed Services 70% 23% 7% 320
Independent Living Waiver 72% 26% 3% 196
Personal Care – Agency Model 74% 20% 5% 310
Aged and Disabled Waiver 83% 7% 9% 307
Adult Day Care Waiver * 62% 37% 2% 234
Residential Care Facility / Assisted Living Facility * 57% 19% 24% 262
Overall State Average * 73% 19% 8% 1629
NCI-AD Weighted Average 79% 18% 3% 12473

Table 19. Length of time receiving LTSS services in current program

Program 0 - 5 months 6 months – less than 1 year 1 year – less than 3 years 3 or more years Don’t know or unclear N
Consumer Directed Services * 5% 3% 20% 66% 5% 271
Independent Living Waiver * 2% 0% 14% 79% 5% 157
Personal Care – Agency Model * 6% 6% 23% 61% 5% 253
Aged and Disabled Waiver * 6% 5% 23% 59% 7% 254
Adult Day Care Waiver * 4% 4% 14% 74% 4% 180
Residential Care Facility / Assisted Living Facility * 1% 4% 12% 81% 2% 247
Overall State Average * 5% 4% 21% 65% 5% 1362
NCI-AD Weighted Average 7% 6% 28% 54% 5% 11942

Outcome Tables and
Comparisons across Programs

Community Participation

Table 21. Gets to do things outside of their home as much as they want to

Bar chart

Table

Program Yes No N
Consumer Directed Services 60% 40% 282
Independent Living Waiver 65% 35% 172
Personal Care – Agency Model 56% 44% 265
Aged and Disabled Waiver 67% 33% 241
Adult Day Care Waiver 62% 38% 128
Residential Care Facility / Assisted Living Facility 67% 33% 219
Overall State Average 61% 39% 1307
NCI-AD Weighted Average 62% 38% 9950

Table 22. Takes part in activities with others as much as they want to (in-person or virtually)

Question changed in 2021-22

Bar chart

Table

Program Yes Sometimes No N
Consumer Directed Services 61% 13% 26% 280
Independent Living Waiver 65% 11% 24% 169
Personal Care – Agency Model 54% 14% 33% 259
Aged and Disabled Waiver 56% 11% 32% 235
Adult Day Care Waiver 60% 17% 24% 131
Residential Care Facility / Assisted Living Facility 70% 12% 18% 216
Overall State Average 59% 13% 28% 1290
NCI-AD Weighted Average 58% 11% 31% 9904

Table 23. Reasons cannot always take part in activities with others as much as they want to (in-person or virtually)

Bar chart

Table

Program Cost or money Transportation Accessibility or lack of equipment Health limitations Not enough help, staffing,or personal assistance Feeling unwelcome in the community Feeling unsafe No community activities outside of home available Lack of information or doesn’t know what type of community activities are available Does not have technology or equipment Other N
Consumer Directed Services 8% 35% 9% 50% 8% 2% 6% 3% 5% 14% 12% 104
Independent Living Waiver 2% 22% 11% 52% 4% 0% 6% 2% 7% 13% 15% 54
Personal Care – Agency Model 4% 38% 11% 43% 7% 2% 3% 4% 7% 13% 5% 114
Aged and Disabled Waiver 5% 34% 11% 47% 3% 1% 1% 1% 5% 14% 8% 93
Adult Day Care Waiver 8% 42% 6% 36% 4% 0% 4% 0% 10% 14% 16% 50
Residential Care Facility / Assisted Living Facility 31% 84% 2% 20% 9% 2% 2% 3% 5% 5% 6% 64
Overall State Average 7% 37% 9% 47% 7% 2% 4% 3% 5% 13% 10% 479
NCI-AD Weighted Average 11% 29% 6% 52% 5% 2% 4% 3% 6% 10% 19% 3908

Access to Community

Table 24. Has transportation to do the things they want outside of home

Proxy respondents were allowed for this question

Bar charts

Tables

Program Yes Sometimes No N
Consumer Directed Services 71% 13% 16% 329
Independent Living Waiver 73% 13% 13% 211
Personal Care – Agency Model 64% 17% 19% 338
Aged and Disabled Waiver 74% 14% 12% 318
Adult Day Care Waiver 79% 8% 12% 295
Residential Care Facility / Assisted Living Facility 64% 18% 18% 255
Overall State Average 70% 14% 16% 1746
NCI-AD Weighted Average 74% 11% 15% 12174

Table 25. Has transportation to get to medical appointments

Proxy respondents were allowed for this question

Bar charts

Tables

Program Yes Sometimes No N
Consumer Directed Services 89% 7% 4% 342
Independent Living Waiver 85% 9% 6% 219
Personal Care – Agency Model 82% 11% 7% 351
Aged and Disabled Waiver 90% 7% 4% 318
Adult Day Care Waiver 94% 3% 3% 297
Residential Care Facility / Assisted Living Facility 94% 4% 2% 257
Overall State Average 88% 7% 5% 1784
NCI-AD Weighted Average 90% 6% 4% 12623

Everyday Living

Table 26. Needs at least some assistance with everyday activities (such as preparing meals, housework, shopping or taking their medications)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Some A lot None N
Consumer Directed Services 33% 64% 4% 366
Independent Living Waiver 14% 85% 1% 235
Personal Care – Agency Model 34% 61% 5% 369
Aged and Disabled Waiver 36% 58% 6% 351
Adult Day Care Waiver 27% 70% 3% 304
Residential Care Facility / Assisted Living Facility 45% 32% 23% 311
Overall State Average 34% 61% 5% 1936
NCI-AD Weighted Average 39% 51% 11% 13376

Table 27. Gets enough support for everyday activities (if needs at least some assistance)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes, always No, not always N
Consumer Directed Services 77% 23% 348
Independent Living Waiver 77% 23% 230
Personal Care – Agency Model 65% 35% 347
Aged and Disabled Waiver 75% 25% 328
Adult Day Care Waiver 83% 17% 291
Residential Care Facility / Assisted Living Facility 89% 11% 231
Overall State Average 75% 25% 1775
NCI-AD Weighted Average 77% 23% 12059

Table 28. Needs at least some assistance with self-care (such as bathing, dressing, going to the bathroom, eating, or moving around their home)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Some A lot None N
Consumer Directed Services 41% 45% 14% 367
Independent Living Waiver 13% 81% 5% 232
Personal Care – Agency Model 33% 42% 25% 363
Aged and Disabled Waiver 34% 41% 24% 353
Adult Day Care Waiver 30% 54% 17% 302
Residential Care Facility / Assisted Living Facility 37% 21% 42% 313
Overall State Average 38% 43% 20% 1930
NCI-AD Weighted Average 33% 38% 29% 13311

Table 29. Gets enough support for self-care (if needs at least some assistance)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes, always No, not always N
Consumer Directed Services 76% 24% 308
Independent Living Waiver 78% 22% 217
Personal Care – Agency Model 65% 35% 263
Aged and Disabled Waiver 78% 22% 259
Adult Day Care Waiver 87% 13% 246
Residential Care Facility / Assisted Living Facility 84% 16% 181
Overall State Average 76% 24% 1474
NCI-AD Weighted Average 78% 22% 9889

Work

Table 30. Has a paid job

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes No N
Consumer Directed Services 2% 98% 310
Independent Living Waiver 3% 97% 211
Personal Care – Agency Model 2% 98% 329
Aged and Disabled Waiver 0% 100% 284
Adult Day Care Waiver 1% 99% 281
Residential Care Facility / Assisted Living Facility 10% 90% 259
Overall State Average 2% 98% 1674
NCI-AD Weighted Average 3% 97% 12708

Table 31. Wants a paid job (if they do not currently have one)

Bar chart

Tables

Program Yes Maybe, not sure No N
Consumer Directed Services 4% 4% 92% 250
Independent Living Waiver 7% 6% 87% 157
Personal Care – Agency Model 4% 3% 93% 236
Aged and Disabled Waiver 2% 1% 97% 209
Adult Day Care Waiver 12% 5% 83% 122
Residential Care Facility / Assisted Living Facility 7% 3% 90% 181
Overall State Average 4% 4% 93% 1155
NCI-AD Weighted Average 9% 5% 87% 9469

Table 32. Someone talked with them about job options (if they do not currently have a job but want one)

Bar chart

Tables

Program Yes No N
Overall State Average 34% 66% 60
NCI-AD Weighted Average 33% 67% 932
* The following programs had an N of less than 20 and were not shown: Consumer Directed Services, Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver, Residential Care Facility / Assisted Living Facility

Table 33. Person Volunteers

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes No N
Consumer Directed Services 3% 97% 290
Independent Living Waiver 7% 93% 208
Personal Care – Agency Model 5% 95% 310
Aged and Disabled Waiver 3% 97% 274
Adult Day Care Waiver 6% 94% 269
Residential Care Facility / Assisted Living Facility 10% 90% 242
Overall State Average 4% 96% 1593
NCI-AD Weighted Average 7% 93% 12441

Table 34. Wants to volunteer (if they do not currently)

Bar chart

Tables

Program Yes Maybe, not sure No N
Consumer Directed Services 4% 6% 91% 234
Independent Living Waiver 3% 7% 90% 148
Personal Care – Agency Model 2% 6% 92% 213
Aged and Disabled Waiver 3% 5% 92% 197
Adult Day Care Waiver 11% 9% 80% 108
Residential Care Facility / Assisted Living Facility 3% 3% 93% 179
Overall State Average 4% 5% 91% 1079
NCI-AD Weighted Average 8% 9% 83% 8838

Relationships

Table 35. Has friends or family they do not live with who are a part of their life

Bar chart

Table

Program Yes No N
Consumer Directed Services 93% 7% 328
Independent Living Waiver 94% 6% 197
Personal Care – Agency Model 90% 10% 286
Aged and Disabled Waiver 91% 9% 281
Adult Day Care Waiver 90% 10% 146
Residential Care Facility / Assisted Living Facility 84% 16% 299
Overall State Average 91% 9% 1537
NCI-AD Weighted Average 89% 11% 10739

Table 36. Able to see or talk to their friends and family when they want (if has friends or family they do not live with who are a part of their life)

Bar chart

Table

Program Yes, always, or chooses not to Most of the time, usually No, only sometimes or rarely, or only some family and/or friends N
Consumer Directed Services 88% 9% 2% 304
Independent Living Waiver 92% 5% 3% 186
Personal Care – Agency Model 84% 9% 7% 254
Aged and Disabled Waiver 86% 9% 4% 255
Adult Day Care Waiver 92% 7% 2% 130
Residential Care Facility / Assisted Living Facility 83% 10% 7% 251
Overall State Average 87% 9% 4% 1380
NCI-AD Weighted Average 85% 11% 5% 9699

Table 37. Reasons cannot always see or talk to friends or family

Bar chart

Table

Program Availability of transportation Accessibility Staffing/personal assistance unavailable Health limitations Someone prevents from/rules against No or limited access to a phone No or limited access to the internet Other N
Consumer Directed Services 18% 6% 0% 12% 3% 3% 0% 3% 33
Personal Care – Agency Model 22% 10% 2% 15% 2% 2% 0% 25% 40
Aged and Disabled Waiver 29% 9% 3% 11% 3% 0% 0% 11% 35
Residential Care Facility / Assisted Living Facility 16% 0% 0% 5% 5% 0% 0% 14% 43
Overall State Average 21% 7% 1% 12% 3% 2% 0% 10% 175
NCI-AD Weighted Average 14% 4% 1% 12% 1% 1% 1% 20% 1389
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Adult Day Care Waiver

Service Coordination

Table 38. How first found out about services they can get

Proxy respondents were allowed for this question

Bar chart

Table

Program Friend Family Aging and disability resource center; area agency on aging; center for independent living State or county agency Case manager or care coordinator Doctor, hospital, clinic Other provider or provider agency Media, newspaper, TV, radio, billboard, brochure, flyer, advertisement Internet or website Other N
Consumer Directed Services 14% 19% 7% 15% 5% 24% 9% 4% 0% 2% 356
Independent Living Waiver 13% 15% 8% 10% 4% 34% 5% 3% 1% 4% 227
Personal Care – Agency Model 10% 18% 9% 11% 8% 26% 11% 2% 1% 2% 358
Aged and Disabled Waiver 11% 18% 14% 12% 6% 22% 7% 1% 1% 3% 338
Adult Day Care Waiver 15% 16% 8% 13% 11% 18% 6% 3% 1% 6% 298
Residential Care Facility / Assisted Living Facility 5% 16% 10% 9% 8% 28% 8% 0% 0% 2% 328
Overall State Average 12% 18% 9% 13% 6% 24% 9% 3% 1% 2% 1905
NCI-AD Weighted Average 9% 17% 14% 13% 11% 19% 10% 1% 1% 4% 13081

Table 39. Can Contact their case manager/care coordinator when needs to

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes, always Most of the time, usually No N
Consumer Directed Services 85% 11% 5% 131
Independent Living Waiver 87% 10% 3% 108
Personal Care – Agency Model 82% 11% 6% 142
Aged and Disabled Waiver 87% 9% 5% 126
Adult Day Care Waiver 84% 6% 10% 141
Residential Care Facility / Assisted Living Facility 75% 19% 7% 165
Overall State Average 84% 11% 5% 813
NCI-AD Weighted Average 77% 15% 8% 8715

Table 40. Who helps person most often (if anyone helps on a regular basis)

Proxy respondents were allowed for this question.

Bar chart

Table

Program Paid support worker who is not a friend or relative Paid family member or spouse or partner Paid friend Unpaid family member or spouse or partner Unpaid friend or volunteer Other N
Consumer Directed Services 36% 45% 6% 13% 1% 0% 314
Independent Living Waiver 39% 41% 6% 11% 2% 0% 223
Personal Care – Agency Model 71% 9% 2% 16% 1% 1% 318
Aged and Disabled Waiver 59% 22% 2% 16% 1% 0% 296
Adult Day Care Waiver 42% 16% 2% 36% 3% 1% 266
Residential Care Facility / Assisted Living Facility 98% 0% 0% 1% 0% 1% 263
Overall State Average 50% 31% 4% 14% 1% 0% 1680
NCI-AD Weighted Average 54% 21% 2% 21% 2% 1% 11418

Table 41. Additional people who help person on a regular basis

Proxy respondents were allowed for this question.

Bar chart

Table

Program Paid support worker who is not a friend or relative Paid family member or spouse/partner Paid friend Unpaid family member or spouse/partner Unpaid friend or volunteer Other No one else provides additional support N
Consumer Directed Services 9% 4% 1% 47% 9% 1% 38% 308
Independent Living Waiver 10% 10% 1% 47% 7% 0% 31% 217
Personal Care – Agency Model 17% 1% 0% 47% 10% 0% 34% 303
Aged and Disabled Waiver 10% 6% 0% 42% 6% 0% 40% 286
Adult Day Care Waiver 10% 4% 1% 42% 8% 2% 42% 255
Residential Care Facility / Assisted Living Facility 27% 1% 0% 12% 2% 0% 59% 171
Overall State Average 11% 4% 1% 45% 8% 0% 38% 1540
NCI-AD Weighted Average 19% 6% 1% 45% 10% 1% 29% 11159

Table 42. Paid support staff come and leave when they are supposed to

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes, all paid support workers, always or almost always Some, or usually No, never or rarely N
Consumer Directed Services 95% 4% 1% 164
Independent Living Waiver 95% 5% 1% 111
Personal Care – Agency Model 87% 8% 5% 198
Aged and Disabled Waiver 90% 8% 2% 163
Adult Day Care Waiver 95% 3% 2% 106
Residential Care Facility / Assisted Living Facility 82% 16% 2% 112
Overall State Average 92% 6% 2% 854
NCI-AD Weighted Average 89% 8% 3% 6441

Table 43. Has a backup plan if their paid support staff do not show up

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes No N
Consumer Directed Services 57% 43% 164
Independent Living Waiver 73% 27% 114
Personal Care – Agency Model 53% 47% 196
Aged and Disabled Waiver 62% 38% 161
Adult Day Care Waiver 75% 25% 103
Residential Care Facility / Assisted Living Facility 75% 25% 109
Overall State Average 58% 42% 847
NCI-AD Weighted Average 66% 34% 6146

Table 44. Has an emergency plan in place in case of widescale emergency

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes No N
Consumer Directed Services 72% 28% 330
Independent Living Waiver 70% 30% 214
Personal Care – Agency Model 64% 36% 332
Aged and Disabled Waiver 75% 25% 313
Adult Day Care Waiver 74% 26% 288
Residential Care Facility / Assisted Living Facility 87% 13% 256
Overall State Average 72% 28% 1733
NCI-AD Weighted Average 75% 25% 12241

Table 45. Knows whom to contact if they have a complaint about their services

Bar chart

Table

Program Yes Maybe, not sure No N
Consumer Directed Services 81% 7% 12% 259
Independent Living Waiver 87% 4% 9% 169
Personal Care – Agency Model 78% 8% 14% 233
Aged and Disabled Waiver 82% 7% 11% 222
Adult Day Care Waiver 82% 5% 14% 125
Residential Care Facility / Assisted Living Facility 86% 6% 8% 256
Overall State Average 81% 7% 12% 1264
NCI-AD Weighted Average 79% 7% 14% 8820

Table 46. Knows whom to contact if they want to make changes to services

Bar chart

Table

Program Yes Maybe, not sure No N
Consumer Directed Services 87% 6% 7% 263
Independent Living Waiver 84% 9% 7% 166
Personal Care – Agency Model 81% 10% 9% 234
Aged and Disabled Waiver 88% 6% 6% 221
Adult Day Care Waiver 87% 5% 9% 126
Residential Care Facility / Assisted Living Facility 68% 15% 17% 230
Overall State Average 85% 7% 8% 1240
NCI-AD Weighted Average 83% 7% 11% 8792

Table 47. Services meet all current needs and goals

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes, completely, all needs and goals Some needs and goals No, not all needs or goals are met N
Consumer Directed Services 68% 26% 6% 302
Independent Living Waiver 65% 28% 7% 208
Personal Care – Agency Model 58% 30% 12% 306
Aged and Disabled Waiver 71% 19% 10% 279
Adult Day Care Waiver 67% 24% 9% 266
Residential Care Facility / Assisted Living Facility 85% 11% 4% 214
Overall State Average 68% 25% 8% 1575
NCI-AD Weighted Average 69% 23% 8% 11222

Table 48. Additional Services and Supports Needed

Proxy respondents were allowed for this question

Bar chart

Table

Program Skilled nursing facility, nursing home services Personal care assistance, personal care servces Homemaker/ chore services Companion services Healthcare home services, home health Home delivered meals Adult day services Transportation Respite/family caregiver support Health care Mental health care Dental care Housing assistance Heating/Cooling assistance Hospice Funeral planning Other N
Consumer Directed Services 2% 43% 41% 10% 11% 35% 3% 34% 12% 8% 14% 26% 34% 29% 2% 3% 27% 96
Independent Living Waiver 3% 37% 32% 10% 18% 27% 4% 36% 8% 11% 15% 11% 19% 8% 0% 0% 29% 73
Personal Care – Agency Model 3% 43% 38% 13% 14% 28% 6% 37% 12% 1% 7% 13% 19% 11% 0% 2% 20% 127
Aged and Disabled Waiver 5% 40% 38% 6% 12% 16% 5% 26% 10% 4% 10% 24% 20% 15% 0% 1% 25% 80
Adult Day Care Waiver 2% 44% 23% 13% 9% 14% 21% 33% 15% 1% 7% 13% 31% 6% 0% 0% 21% 87
Residential Care Facility / Assisted Living Facility 12% 9% 9% 9% 3% 0% 3% 16% 0% 3% 3% 6% 12% 0% 0% 0% 31% 32
Overall State Average 3% 41% 38% 10% 12% 29% 4% 33% 12% 6% 11% 22% 28% 21% 1% 2% 25% 495
NCI-AD Weighted Average 3% 30% 38% 14% 9% 14% 6% 27% 7% 5% 7% 16% 19% 9% 1% 2% 21% 3401

Table 49. Case manager talked to them about services that might help with their unmet needs (if all current needs and goals are not being met and has a case manager)

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes No N
Consumer Directed Services 49% 51% 37
Independent Living Waiver 47% 53% 30
Personal Care – Agency Model 50% 50% 52
Aged and Disabled Waiver 58% 42% 24
Adult Day Care Waiver 42% 58% 38
Overall State Average 51% 49% 200
NCI-AD Weighted Average 51% 49% 2267
* The following programs had an N of less than 20 and were not shown: Residential Care Facility / Assisted Living Facility

Care Coordination

Table 50. Knows how to manage chronic conditions (if has at least one)

Bar chart

Table

Program Yes In-between, or some conditions No N
Consumer Directed Services 91% 8% 2% 261
Independent Living Waiver 87% 7% 6% 156
Personal Care – Agency Model 88% 8% 4% 243
Aged and Disabled Waiver 94% 4% 1% 213
Adult Day Care Waiver 85% 9% 6% 118
Residential Care Facility / Assisted Living Facility 70% 18% 12% 185
Overall State Average 90% 7% 2% 1176
NCI-AD Weighted Average 86% 10% 5% 9257

Table 51. Stayed overnight in a hospital or rehab/nursing facility in the past 12 months and was discharged to go home)

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 31% 69% 304
Independent Living Waiver 38% 62% 210
Personal Care – Agency Model 30% 70% 319
Aged and Disabled Waiver 33% 67% 281
Adult Day Care Waiver 19% 81% 280
Residential Care Facility / Assisted Living Facility 14% 86% 217
Overall State Average 30% 70% 1611
NCI-AD Weighted Average 28% 72% 12427

Table 52. Felt comfortable and supported enough to go home after stay in a hospital or rehab/nursing facility (if had an overnight stay in the past12 months and was discharged to go home)

Bar chart

Table

Program Yes In-between No N
Consumer Directed Services 86% 10% 4% 80
Independent Living Waiver 84% 8% 8% 64
Personal Care – Agency Model 73% 16% 11% 73
Aged and Disabled Waiver 90% 1% 9% 68
Adult Day Care Waiver 87% 3% 9% 32
Residential Care Facility / Assisted Living Facility 100% 0% 0% 25
Overall State Average 85% 9% 6% 342
NCI-AD Weighted Average 82% 8% 10% 2560

Table 53. Someone followed-up to make sure they had needed services and supports after stay in a hospital or rehab/nursing facility (if had an overnight stay in the past 12 months and was discharged to go home)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes No N
Consumer Directed Services 88% 12% 85
Independent Living Waiver 89% 11% 71
Personal Care – Agency Model 80% 20% 86
Aged and Disabled Waiver 85% 15% 88
Adult Day Care Waiver 84% 16% 50
Residential Care Facility / Assisted Living Facility 88% 12% 26
Overall State Average 86% 14% 406
NCI-AD Weighted Average 84% 16% 3068

Choice and Control

Table 54. Feels in control of their life

Bar chart

Table

Program Yes, almost always, always In-between, sometimes No, rarely, never N
Consumer Directed Services 72% 21% 7% 276
Independent Living Waiver 77% 16% 7% 178
Personal Care – Agency Model 70% 23% 7% 246
Aged and Disabled Waiver 74% 19% 7% 225
Adult Day Care Waiver 76% 20% 3% 123
Residential Care Facility / Assisted Living Facility 68% 24% 8% 189
Overall State Average 72% 21% 7% 1237
NCI-AD Weighted Average 72% 21% 7% 9877

Table 55. Able to furnish and decorate their room however they want to (if living in a group setting)

Bar chart

Table

Program In all ways In most ways Only in some ways, or not at all N
Residential Care Facility / Assisted Living Facility 61% 24% 15% 221
Overall State Average 61% 24% 15% 235
NCI-AD Weighted Average 60% 27% 13% 1484
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Table 56. Can choose or change their roommate (if living in a group setting and has a roommate)

Bar chart

Table

Program Yes No N
Residential Care Facility / Assisted Living Facility 23% 77% 150
Overall State Average 22% 78% 154
NCI-AD Weighted Average 22% 78% 739
* The following programs had an N of less than 20 and were not shown: Aged and Disabled Waiver, Adult Day Care Waiver

Tables 57. Can get up and go to bed when they want to

Bar chart

Table

Program Yes, always, or almost always Somedays, sometimes No, never N
Consumer Directed Services 92% 7% 1% 280
Independent Living Waiver 80% 12% 8% 172
Personal Care – Agency Model 90% 8% 3% 252
Aged and Disabled Waiver 95% 5% 0% 236
Adult Day Care Waiver 92% 7% 1% 124
Residential Care Facility / Assisted Living Facility 86% 12% 1% 212
Overall State Average 92% 7% 1% 1276
NCI-AD Weighted Average 92% 6% 2% 10057

Tables 58. Can eat their meals when they want to

Bar chart

Table

Program Yes, always, or almost always Somedays, sometimes No, never N
Consumer Directed Services 95% 5% 0% 280
Independent Living Waiver 87% 8% 5% 172
Personal Care – Agency Model 90% 8% 2% 252
Aged and Disabled Waiver 95% 4% 1% 236
Adult Day Care Waiver 94% 6% 0% 126
Residential Care Facility / Assisted Living Facility 21% 13% 66% 215
Overall State Average 91% 5% 4% 1281
NCI-AD Weighted Average 90% 5% 5% 10050

Self Direction

Table 59. Uses self-directed supports option

Information may only come from existing records

Bar chart

Table

Program Yes No N
Consumer Directed Services 84% 16% 249
Independent Living Waiver 78% 22% 147
Personal Care – Agency Model 45% 55% 234
Aged and Disabled Waiver 47% 53% 218
Adult Day Care Waiver 51% 49% 159
Residential Care Facility / Assisted Living Facility 10% 90% 219
Overall State Average 65% 35% 1226
NCI-AD Weighted Average 39% 61% 11585

Table 60. Can choose or change their services

Question changed in 2021-22; proxy respondents were allowed for this question

Bar chart

Table

Program Yes, all services Sometimes, or some services No N
Consumer Directed Services 82% 6% 11% 288
Independent Living Waiver 84% 6% 10% 202
Personal Care – Agency Model 77% 8% 15% 286
Aged and Disabled Waiver 83% 7% 10% 265
Adult Day Care Waiver 79% 6% 15% 259
Residential Care Facility / Assisted Living Facility 41% 17% 42% 265
Overall State Average 79% 7% 13% 1565
NCI-AD Weighted Average 76% 13% 11% 10199

Table 61. Can choose or change when and how often they receive services

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes, all services Sometimes, or some services No N
Consumer Directed Services 75% 9% 16% 281
Independent Living Waiver 76% 11% 14% 199
Personal Care – Agency Model 69% 10% 21% 272
Aged and Disabled Waiver 81% 7% 11% 258
Adult Day Care Waiver 76% 8% 16% 254
Residential Care Facility / Assisted Living Facility 37% 18% 45% 258
Overall State Average 74% 9% 17% 1522
NCI-AD Weighted Average 71% 15% 14% 10144

Table 62. Can choose or change the people who provide paid supports if wants

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes, all services Sometimes, or some services No N
Consumer Directed Services 91% 2% 8% 170
Independent Living Waiver 97% 0% 3% 121
Personal Care – Agency Model 86% 3% 11% 190
Aged and Disabled Waiver 90% 2% 7% 161
Adult Day Care Waiver 90% 2% 8% 103
Residential Care Facility / Assisted Living Facility 11% 18% 71% 132
Overall State Average 86% 3% 11% 877
NCI-AD Weighted Average 79% 7% 14% 6616

Satisfaction

Table 63. Services help them live the life they want

New question in 2021-2022

Bar chart

Table

Program Yes No N
Consumer Directed Services 88% 12% 260
Independent Living Waiver 89% 11% 169
Personal Care – Agency Model 85% 15% 226
Aged and Disabled Waiver 88% 12% 217
Adult Day Care Waiver 89% 11% 122
Residential Care Facility / Assisted Living Facility 91% 9% 179
Overall State Average 87% 13% 1173
NCI-AD Weighted Average 89% 11% 8688

Table 64. Case manager/care coordinator changes too often

New question in 2021-2022

Bar chart

Table

Program Yes No N
Consumer Directed Services 27% 73% 111
Independent Living Waiver 19% 81% 81
Personal Care – Agency Model 40% 60% 95
Aged and Disabled Waiver 36% 64% 87
Adult Day Care Waiver 27% 73% 64
Residential Care Facility / Assisted Living Facility 38% 62% 111
Overall State Average 31% 69% 549
NCI-AD Weighted Average 31% 69% 6060

Table 65. Paid support staff change too often

Bar chart

Table

Program Yes Sometimes No N
Consumer Directed Services 9% 3% 88% 149
Independent Living Waiver 13% 5% 82% 110
Personal Care – Agency Model 18% 12% 70% 164
Aged and Disabled Waiver 11% 12% 77% 142
Adult Day Care Waiver 6% 6% 89% 71
Residential Care Facility / Assisted Living Facility 29% 22% 49% 107
Overall State Average 12% 7% 80% 743
NCI-AD Weighted Average 13% 12% 75% 5521

Table 66. Likes where they live

Bar chart

Table

Program Yes In-between, most of the time No N
Consumer Directed Services 86% 6% 8% 318
Independent Living Waiver 89% 4% 7% 191
Personal Care – Agency Model 83% 5% 12% 284
Aged and Disabled Waiver 84% 5% 11% 281
Adult Day Care Waiver 78% 8% 14% 139
Residential Care Facility / Assisted Living Facility 75% 13% 12% 302
Overall State Average 84% 6% 10% 1515
NCI-AD Weighted Average 83% 8% 9% 10645

Table 67. Reasons does not like where they live (if does not always live where they live)

Bar chart

Table

Program Accessibility of house/ building Feels unsafe in/dislikes neighborhood Feels unsafe in residence Residence/ building needs repair/upkeep Doesn’t feel like home Layout/size of residence/ building Problems with neighbors/ housemates/other residents Problems with staff Insufficient amount/type of staff Wants more independence/ control Wants more privacy Wants to be closer to family/friends Feels isolated from community/ feels lonely Affordability/Cost of housing Other N
Consumer Directed Services 21% 21% 3% 13% 8% 8% 13% 8% 0% 0% 5% 5% 10% 5% 23% 39
Personal Care – Agency Model 11% 23% 5% 14% 25% 18% 16% 2% 2% 9% 16% 11% 7% 7% 11% 44
Aged and Disabled Waiver 14% 18% 5% 20% 16% 9% 7% 9% 0% 7% 16% 2% 2% 14% 20% 44
Adult Day Care Waiver 10% 27% 13% 23% 13% 3% 10% 7% 3% 10% 13% 7% 3% 10% 13% 30
Residential Care Facility / Assisted Living Facility 1% 1% 1% 7% 36% 4% 11% 11% 0% 24% 15% 13% 4% 0% 8% 75
Overall State Average 15% 19% 3% 14% 15% 9% 12% 7% 0% 6% 11% 6% 7% 7% 19% 252
NCI-AD Weighted Average 9% 16% 10% 16% 15% 9% 12% 9% 4% 9% 9% 8% 6% 7% 33% 1989

Table 68. Wants to live somewhere else

Bar chart

Table

Program No Maybe Yes N
Consumer Directed Services 71% 5% 24% 317
Independent Living Waiver 68% 7% 25% 188
Personal Care – Agency Model 70% 6% 25% 282
Aged and Disabled Waiver 72% 6% 21% 276
Adult Day Care Waiver 53% 8% 39% 138
Residential Care Facility / Assisted Living Facility 54% 9% 37% 297
Overall State Average 70% 6% 25% 1498
NCI-AD Weighted Average 68% 9% 23% 10479

Table 69. Where person would prefer to live (if wants to live somewhere else)

Question responses changed in 2021-2022

Bar chart

Table

Program Different kind of home Live independently With or closer to family In a different neighborhood A different type of geography or climate Other N
Consumer Directed Services 44% 9% 11% 22% 18% 9% 93
Independent Living Waiver 38% 10% 9% 33% 16% 14% 60
Personal Care – Agency Model 48% 10% 11% 17% 22% 17% 86
Aged and Disabled Waiver 41% 13% 15% 24% 12% 19% 76
Adult Day Care Waiver 30% 12% 6% 42% 9% 12% 65
Residential Care Facility / Assisted Living Facility 26% 61% 19% 8% 2% 4% 137
Overall State Average 42% 15% 12% 21% 16% 12% 517
NCI-AD Weighted Average 33% 15% 12% 17% 20% 22% 3569

Table 70. Paid support staff do things the way they want them done

Bar chart

Table

Program Yes, all paid support workiers, always, or almost always Some, or usually No, never or rarely N
Consumer Directed Services 94% 4% 2% 159
Independent Living Waiver 95% 4% 1% 117
Personal Care – Agency Model 82% 14% 4% 165
Aged and Disabled Waiver 90% 9% 1% 147
Adult Day Care Waiver 92% 7% 1% 71
Residential Care Facility / Assisted Living Facility 77% 15% 7% 111
Overall State Average 90% 7% 2% 770
NCI-AD Weighted Average 85% 12% 4% 5908

Table 71. Usually likes how they spend their time during the day

Bar chart

Table

Program No, never Somedays, or sometimes Yes, always, or almost always N
Consumer Directed Services 11% 21% 68% 269
Independent Living Waiver 10% 22% 68% 164
Personal Care – Agency Model 8% 32% 60% 248
Aged and Disabled Waiver 10% 24% 66% 226
Adult Day Care Waiver 9% 23% 69% 124
Residential Care Facility / Assisted Living Facility 4% 25% 71% 211
Overall State Average 10% 24% 66% 1242
NCI-AD Weighted Average 9% 27% 64% 9928

Technology

Table 72. Has access to the internet

New question in 2021-22; proxy respondents were allowed for this question

Bar charts

Table

Program Yes Sometimes No N
Consumer Directed Services 67% 1% 32% 322
Independent Living Waiver 84% 0% 16% 218
Personal Care – Agency Model 54% 2% 43% 332
Aged and Disabled Waiver 53% 1% 46% 291
Adult Day Care Waiver 64% 3% 33% 282
Residential Care Facility / Assisted Living Facility 40% 2% 58% 243
Overall State Average 61% 1% 38% 1688
NCI-AD Weighted Average 64% 2% 34% 12364

Table 73. Frequency with which people use the internet

New question in 2021-22; proxy respondents were allowed for this question

Bar charts

Table

Program Daily Several times a week Several times a month Several times a year Don’t use it at all N
Consumer Directed Services 66% 14% 9% 2% 8% 212
Independent Living Waiver 77% 12% 3% 1% 7% 177
Personal Care – Agency Model 63% 9% 6% 4% 17% 179
Aged and Disabled Waiver 61% 12% 7% 3% 17% 145
Adult Day Care Waiver 53% 17% 6% 3% 20% 175
Residential Care Facility / Assisted Living Facility 56% 14% 10% 2% 18% 97
Overall State Average 64% 13% 8% 2% 12% 985
NCI-AD Weighted Average 58% 14% 6% 2% 19% 8098

Table 74. Always has a stable internet connection

New question in 2021-22; proxy respondents were allowed for this question

Bar charts

Table

Program Always Works Sometimes works Rarely or never wrks N
Consumer Directed Services 89% 11% 0% 209
Independent Living Waiver 89% 10% 1% 181
Personal Care – Agency Model 84% 13% 2% 171
Aged and Disabled Waiver 90% 9% 1% 149
Adult Day Care Waiver 93% 6% 1% 179
Residential Care Facility / Assisted Living Facility 78% 21% 1% 92
Overall State Average 88% 11% 1% 981
NCI-AD Weighted Average 85% 13% 1% 7644

Table 75. Has talked to health professionals using video conference/telehealth

New question in 2021-22; Proxy respondents were allowed for this question

Bar charts

Table

Program Yes No N
Consumer Directed Services 39% 61% 301
Independent Living Waiver 44% 56% 201
Personal Care – Agency Model 36% 64% 302
Aged and Disabled Waiver 24% 76% 262
Adult Day Care Waiver 34% 66% 266
Residential Care Facility / Assisted Living Facility 32% 68% 203
Overall State Average 35% 65% 1535
NCI-AD Weighted Average 43% 57% 12171

Access to Needed Equipment

Table 76. Need for grab bars in the bathroom or elsewhere in their home

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 21% 6% 49% 24% 354
Independent Living Waiver 12% 6% 49% 33% 228
Personal Care – Agency Model 14% 5% 58% 23% 355
Aged and Disabled Waiver 13% 5% 64% 18% 336
Adult Day Care Waiver 14% 4% 36% 46% 298
Residential Care Facility / Assisted Living Facility 1% 1% 81% 17% 281
Overall State Average 17% 5% 55% 23% 1852
NCI-AD Weighted Average 11% 5% 65% 20% 13100

Table 77. Need for other bathroom modifications

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 18% 3% 20% 59% 340
Independent Living Waiver 19% 4% 34% 44% 225
Personal Care – Agency Model 16% 2% 27% 55% 347
Aged and Disabled Waiver 15% 1% 31% 54% 323
Adult Day Care Waiver 17% 2% 13% 67% 294
Residential Care Facility / Assisted Living Facility 1% 0% 41% 59% 269
Overall State Average 16% 2% 25% 57% 1798
NCI-AD Weighted Average 12% 4% 41% 43% 12720

Table 78. Need for a shower chair

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 14% 5% 51% 30% 325
Independent Living Waiver 10% 8% 52% 30% 220
Personal Care – Agency Model 7% 6% 57% 30% 334
Aged and Disabled Waiver 11% 4% 63% 22% 300
Adult Day Care Waiver 14% 4% 26% 57% 286
Residential Care Facility / Assisted Living Facility 1% 0% 33% 66% 252
Overall State Average 12% 5% 53% 31% 1717
NCI-AD Weighted Average 7% 6% 63% 24% 12618

Table 79. Need for a specialized bed

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 15% 2% 17% 65% 341
Independent Living Waiver 14% 9% 40% 37% 225
Personal Care – Agency Model 13% 3% 16% 68% 346
Aged and Disabled Waiver 12% 2% 20% 67% 320
Adult Day Care Waiver 9% 1% 11% 79% 289
Residential Care Facility / Assisted Living Facility 1% 0% 16% 83% 277
Overall State Average 13% 2% 17% 67% 1798
NCI-AD Weighted Average 8% 4% 25% 62% 12782

Table 80. Need for a ramp (either inside or outside of their residence)

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 9% 3% 19% 69% 341
Independent Living Waiver 11% 4% 50% 35% 230
Personal Care – Agency Model 10% 3% 23% 64% 350
Aged and Disabled Waiver 10% 2% 20% 69% 325
Adult Day Care Waiver 7% 2% 14% 77% 294
Residential Care Facility / Assisted Living Facility 0% 0% 30% 70% 280
Overall State Average 9% 3% 20% 68% 1820
NCI-AD Weighted Average 7% 3% 29% 60% 12762

Table 81. Need for other home modifications

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 11% 2% 6% 80% 125
Independent Living Waiver 7% 1% 16% 76% 105
Personal Care – Agency Model 9% 2% 5% 85% 125
Aged and Disabled Waiver 9% 3% 2% 87% 126
Adult Day Care Waiver 8% 1% 8% 84% 104
Residential Care Facility / Assisted Living Facility 1% 0% 0% 99% 94
Overall State Average 10% 2% 5% 83% 679
NCI-AD Weighted Average 11% 3% 13% 73% 5525

Table 82. Need for a wheelchair

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 10% 4% 22% 65% 336
Independent Living Waiver 5% 14% 67% 15% 230
Personal Care – Agency Model 6% 6% 33% 56% 338
Aged and Disabled Waiver 7% 4% 28% 61% 313
Adult Day Care Waiver 5% 3% 16% 76% 294
Residential Care Facility / Assisted Living Facility 2% 0% 13% 86% 265
Overall State Average 8% 4% 25% 63% 1776
NCI-AD Weighted Average 5% 6% 32% 56% 12868

Table 83. Need for a scooter

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 10% 3% 6% 81% 337
Independent Living Waiver 5% 2% 8% 85% 221
Personal Care – Agency Model 9% 1% 8% 82% 332
Aged and Disabled Waiver 6% 1% 7% 87% 305
Adult Day Care Waiver 7% 1% 2% 90% 290
Residential Care Facility / Assisted Living Facility 2% 0% 2% 97% 264
Overall State Average 8% 2% 6% 84% 1749
NCI-AD Weighted Average 9% 2% 8% 82% 12713

Table 84. Need for a walker

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 9% 6% 47% 38% 339
Independent Living Waiver 2% 4% 28% 67% 225
Personal Care – Agency Model 3% 7% 49% 41% 341
Aged and Disabled Waiver 5% 4% 54% 37% 315
Adult Day Care Waiver 3% 3% 19% 75% 293
Residential Care Facility / Assisted Living Facility 0% 2% 26% 73% 262
Overall State Average 6% 6% 47% 41% 1775
NCI-AD Weighted Average 4% 6% 52% 38% 12927

Table 85. Need for hearing aids

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 7% 3% 8% 82% 325
Independent Living Waiver 2% 0% 6% 91% 216
Personal Care – Agency Model 7% 6% 11% 77% 333
Aged and Disabled Waiver 10% 3% 8% 79% 298
Adult Day Care Waiver 3% 2% 2% 92% 291
Residential Care Facility / Assisted Living Facility 2% 1% 6% 91% 257
Overall State Average 7% 3% 8% 81% 1720
NCI-AD Weighted Average 8% 4% 11% 77% 12598

Table 86. Need for glasses

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 9% 13% 55% 23% 326
Independent Living Waiver 2% 12% 51% 35% 213
Personal Care – Agency Model 7% 11% 62% 20% 328
Aged and Disabled Waiver 6% 17% 59% 19% 298
Adult Day Care Waiver 6% 10% 43% 41% 288
Residential Care Facility / Assisted Living Facility 1% 7% 65% 26% 261
Overall State Average 7% 13% 57% 22% 1714
NCI-AD Weighted Average 6% 15% 58% 21% 12584

Table 87. Need for personal emergency response system (PERS)

Proxy respondents were allowed for this question

Bar chart

Tables

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 27% 2% 19% 52% 327
Independent Living Waiver 20% 1% 15% 63% 216
Personal Care – Agency Model 23% 2% 23% 53% 329
Aged and Disabled Waiver 23% 2% 26% 50% 295
Adult Day Care Waiver 16% 1% 12% 71% 286
Residential Care Facility / Assisted Living Facility 7% 0% 47% 46% 256
Overall State Average 24% 2% 22% 52% 1709
NCI-AD Weighted Average 11% 3% 42% 43% 12608

Table 88. Need for an oxygen machine

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 3% 2% 13% 81% 324
Independent Living Waiver 1% 3% 21% 76% 218
Personal Care – Agency Model 2% 3% 15% 79% 326
Aged and Disabled Waiver 4% 1% 20% 75% 299
Adult Day Care Waiver 0% 1% 5% 94% 291
Residential Care Facility / Assisted Living Facility 0% 0% 7% 92% 261
Overall State Average 3% 2% 14% 80% 1719
NCI-AD Weighted Average 2% 1% 15% 81% 12609

Table 89. Need for other equipment

Proxy respondents were allowed for this question

Bar chart

Table

Program Needs Has but needs change or update Has and does not need change or update Does not need N
Consumer Directed Services 4% 5% 18% 73% 124
Independent Living Waiver 5% 5% 16% 74% 96
Personal Care – Agency Model 6% 1% 8% 85% 117
Aged and Disabled Waiver 6% 2% 10% 83% 126
Adult Day Care Waiver 6% 3% 8% 83% 109
Residential Care Facility / Assisted Living Facility 0% 1% 0% 99% 95
Overall State Average 5% 3% 13% 79% 667
NCI-AD Weighted Average 11% 5% 19% 64% 5807

Medications

Table 90. Knows what prescription medications are for

Bar charts

Tables

Program Yes In-between, or some medications No N
Consumer Directed Services 94% 4% 1% 270
Independent Living Waiver 91% 4% 5% 164
Personal Care – Agency Model 87% 10% 2% 247
Aged and Disabled Waiver 93% 6% 1% 222
Adult Day Care Waiver 85% 10% 4% 124
Residential Care Facility / Assisted Living Facility 68% 18% 14% 189
Overall State Average 92% 6% 2% 1216
NCI-AD Weighted Average 86% 9% 5% 9730

Table 91. Takes medication to help feel less sad or depressed

Proxy respondents were allowed for this question.

Bar charts

Tables

Program Yes No N
Consumer Directed Services 41% 59% 319
Independent Living Waiver 37% 63% 209
Personal Care – Agency Model 53% 47% 316
Aged and Disabled Waiver 46% 54% 282
Adult Day Care Waiver 42% 58% 273
Residential Care Facility / Assisted Living Facility 79% 21% 232
Overall State Average 46% 54% 1631
NCI-AD Weighted Average 41% 59% 11913

Healthcare

Table 92. Has access to mental health services if they want them

Bar chart

Table

Program Yes Sometimes No N
Consumer Directed Services 93% 1% 7% 260
Independent Living Waiver 87% 1% 13% 165
Personal Care – Agency Model 88% 0% 12% 229
Aged and Disabled Waiver 91% 2% 7% 193
Adult Day Care Waiver 86% 0% 14% 118
Residential Care Facility / Assisted Living Facility 96% 1% 3% 181
Overall State Average 92% 1% 7% 1146
NCI-AD Weighted Average 89% 1% 10% 8807

Table 93. Can get an appointment to see or talk to their primary care doctor when they need to

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes,always Usually No, only sometimes or rarely N
Consumer Directed Services 82% 13% 4% 322
Independent Living Waiver 87% 9% 4% 212
Personal Care – Agency Model 79% 15% 6% 339
Aged and Disabled Waiver 85% 11% 4% 299
Adult Day Care Waiver 82% 15% 3% 287
Residential Care Facility / Assisted Living Facility 84% 11% 5% 231
Overall State Average 82% 13% 5% 1690
NCI-AD Weighted Average 83% 12% 6% 12510

Table 94. Went to the emergency room for any reason in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 45% 55% 318
Independent Living Waiver 49% 51% 217
Personal Care – Agency Model 44% 56% 320
Aged and Disabled Waiver 38% 62% 289
Adult Day Care Waiver 31% 69% 285
Residential Care Facility / Assisted Living Facility 23% 77% 224
Overall State Average 42% 58% 1653
NCI-AD Weighted Average 39% 61% 12558

Table 95. Has gone to the emergency room in the past 12 months due to falling or losing balance

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 21% 79% 140
Independent Living Waiver 22% 78% 102
Personal Care – Agency Model 29% 71% 137
Aged and Disabled Waiver 31% 69% 108
Adult Day Care Waiver 17% 83% 88
Residential Care Facility / Assisted Living Facility 31% 69% 52
Overall State Average 25% 75% 627
NCI-AD Weighted Average 30% 70% 4817

Table 96. Has gone to the emergency room in the past 12 months due to tooth or mouth pain

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 1% 99% 140
Independent Living Waiver 4% 96% 102
Personal Care – Agency Model 0% 100% 134
Aged and Disabled Waiver 3% 97% 107
Adult Day Care Waiver 6% 94% 86
Residential Care Facility / Assisted Living Facility 0% 100% 52
Overall State Average 2% 98% 621
NCI-AD Weighted Average 2% 98% 4768

Table 97. Has gone to the emergency room in the past 12 months due to not being able to see their primary care physician

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 4% 96% 137
Independent Living Waiver 6% 94% 102
Personal Care – Agency Model 4% 96% 133
Aged and Disabled Waiver 2% 98% 107
Adult Day Care Waiver 6% 94% 86
Residential Care Facility / Assisted Living Facility 0% 100% 52
Overall State Average 3% 97% 617
NCI-AD Weighted Average 8% 92% 4748

Table 98. Had a physical exam/wellness visit in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 88% 12% 316
Independent Living Waiver 80% 20% 202
Personal Care – Agency Model 88% 12% 323
Aged and Disabled Waiver 90% 10% 279
Adult Day Care Waiver 83% 17% 275
Residential Care Facility / Assisted Living Facility 85% 15% 222
Overall State Average 88% 12% 1617
NCI-AD Weighted Average 84% 16% 12256

Table 99. Had a hearing exam in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 28% 72% 306
Independent Living Waiver 28% 72% 200
Personal Care – Agency Model 23% 77% 308
Aged and Disabled Waiver 30% 70% 266
Adult Day Care Waiver 27% 73% 272
Residential Care Facility / Assisted Living Facility 24% 76% 209
Overall State Average 27% 73% 1561
NCI-AD Weighted Average 32% 68% 11907

Table 100. Had a vision exam in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 54% 46% 314
Independent Living Waiver 47% 53% 204
Personal Care – Agency Model 54% 46% 319
Aged and Disabled Waiver 55% 45% 278
Adult Day Care Waiver 46% 54% 277
Residential Care Facility / Assisted Living Facility 69% 31% 218
Overall State Average 55% 45% 1610
NCI-AD Weighted Average 60% 40% 12140

Table 101. Had a dental visit in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 33% 67% 309
Independent Living Waiver 36% 64% 202
Personal Care – Agency Model 32% 68% 302
Aged and Disabled Waiver 32% 68% 266
Adult Day Care Waiver 47% 53% 275
Residential Care Facility / Assisted Living Facility 51% 49% 214
Overall State Average 34% 66% 1568
NCI-AD Weighted Average 45% 55% 11839

Table 102. Had a flu shot in the past 12 months

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 59% 41% 310
Independent Living Waiver 52% 48% 202
Personal Care – Agency Model 68% 32% 323
Aged and Disabled Waiver 71% 29% 277
Adult Day Care Waiver 64% 36% 280
Residential Care Facility / Assisted Living Facility 86% 14% 214
Overall State Average 64% 36% 1606
NCI-AD Weighted Average 71% 29% 12191

Wellness

Table 103. Has access to healthy foods when they want them

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes, often Sometimes No N
Consumer Directed Services 84% 11% 5% 309
Independent Living Waiver 87% 9% 4% 203
Personal Care – Agency Model 80% 14% 6% 320
Aged and Disabled Waiver 86% 10% 4% 285
Adult Day Care Waiver 85% 8% 7% 278
Residential Care Facility / Assisted Living Facility 83% 14% 3% 242
Overall State Average 84% 11% 5% 1637
NCI-AD Weighted Average 86% 10% 4% 12479

Table 104. Overall Health

Proxy respondents were allowed for this question

Bar chart

Table

Program Poor Fair Good Very Good Excellent N
Consumer Directed Services 21% 47% 24% 6% 2% 324
Independent Living Waiver 17% 35% 28% 14% 5% 209
Personal Care – Agency Model 20% 44% 28% 6% 2% 329
Aged and Disabled Waiver 19% 39% 33% 7% 3% 304
Adult Day Care Waiver 8% 31% 36% 16% 8% 286
Residential Care Facility / Assisted Living Facility 7% 27% 36% 19% 12% 245
Overall State Average 19% 43% 28% 7% 3% 1697
NCI-AD Weighted Average 18% 39% 31% 10% 3% 12815

Table 105. Health is better than 12 months ago

Proxy respondents were allowed for this question

Bar chart

Table

Program Much worse Somewhat worse About the same Somewhat better Much better N
Consumer Directed Services 11% 26% 49% 12% 2% 320
Independent Living Waiver 8% 22% 55% 10% 4% 210
Personal Care – Agency Model 10% 28% 48% 9% 6% 327
Aged and Disabled Waiver 8% 26% 50% 12% 4% 302
Adult Day Care Waiver 3% 13% 68% 12% 4% 288
Residential Care Facility / Assisted Living Facility 2% 13% 63% 16% 5% 243
Overall State Average 10% 26% 50% 11% 3% 1690
NCI-AD Weighted Average 8% 27% 47% 13% 5% 12714

Table 106. In the past 12 months, forget things more often than before

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 38% 62% 313
Independent Living Waiver 24% 76% 204
Personal Care – Agency Model 45% 55% 319
Aged and Disabled Waiver 45% 55% 284
Adult Day Care Waiver 33% 67% 273
Residential Care Facility / Assisted Living Facility 29% 71% 225
Overall State Average 40% 60% 1618
NCI-AD Weighted Average 43% 57% 12136

Table 107. Has discussed forgetting things with a doctor or a nurse (if they have been forgetting things more often in the past 12 months)

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes No N
Consumer Directed Services 70% 30% 120
Independent Living Waiver 56% 44% 45
Personal Care – Agency Model 72% 28% 138
Aged and Disabled Waiver 73% 27% 125
Adult Day Care Waiver 75% 25% 87
Residential Care Facility / Assisted Living Facility 63% 37% 63
Overall State Average 71% 29% 578
NCI-AD Weighted Average 70% 30% 5400

Table 108. Often feels lonely

Bar chart

Table

Program Yes, often Sometimes Not often, never or almost never N
Consumer Directed Services 19% 29% 52% 258
Independent Living Waiver 21% 30% 49% 154
Personal Care – Agency Model 23% 37% 40% 229
Aged and Disabled Waiver 16% 36% 48% 203
Adult Day Care Waiver 22% 29% 50% 115
Residential Care Facility / Assisted Living Facility 12% 48% 40% 199
Overall State Average 19% 32% 49% 1158
NCI-AD Weighted Average 20% 35% 45% 9584

Affordability

Table 109. Ever had to skip meals due to financial worries

Proxy respondents were allowed for this question

Bar chart

Tables

Program Yes, often Sometimes No N
Consumer Directed Services 11% 10% 79% 308
Independent Living Waiver 6% 6% 88% 200
Personal Care – Agency Model 7% 10% 83% 318
Aged and Disabled Waiver 4% 5% 91% 283
Adult Day Care Waiver 6% 7% 87% 280
Residential Care Facility / Assisted Living Facility 3% 2% 96% 251
Overall State Average 8% 9% 83% 1640
NCI-AD Weighted Average 5% 6% 89% 12415

Safety

Tables 110. They or someone else has concerns about falling or being unstable

Proxy respondents were allowed for this question.

Bar chart

Table

Program No Sometimes Yes, often N
Consumer Directed Services 48% 17% 35% 340
Independent Living Waiver 68% 9% 24% 223
Personal Care – Agency Model 48% 15% 37% 351
Aged and Disabled Waiver 44% 18% 39% 329
Adult Day Care Waiver 61% 17% 22% 299
Residential Care Facility / Assisted Living Facility 71% 15% 14% 266
Overall State Average 49% 17% 35% 1808
NCI-AD Weighted Average 46% 18% 37% 13019

Tables 111. Has worked with someone to reduce risk of falls (if someone has concerns about them falling or being unstable)

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes No N
Consumer Directed Services 84% 16% 171
Independent Living Waiver 83% 17% 70
Personal Care – Agency Model 88% 12% 180
Aged and Disabled Waiver 85% 15% 179
Adult Day Care Waiver 84% 16% 112
Residential Care Facility / Assisted Living Facility 88% 12% 77
Overall State Average 85% 15% 789
NCI-AD Weighted Average 84% 16% 7083

Tables 112. Able to get to safety quickly in case of an emergency

Proxy respondents were allowed for this question.

Bar chart

Table

Program Yes No N
Consumer Directed Services 85% 15% 320
Independent Living Waiver 73% 27% 215
Personal Care – Agency Model 80% 20% 334
Aged and Disabled Waiver 88% 12% 308
Adult Day Care Waiver 87% 13% 292
Residential Care Facility / Assisted Living Facility 93% 7% 264
Overall State Average 85% 15% 1733
NCI-AD Weighted Average 82% 18% 12179

Table 113. Knows who to talk to if they are mistreated or neglected

Bar chart

Table

Program Yes Maybe, not sure No N
Consumer Directed Services 84% 3% 13% 286
Independent Living Waiver 81% 8% 11% 180
Personal Care – Agency Model 77% 6% 17% 266
Aged and Disabled Waiver 80% 5% 14% 244
Adult Day Care Waiver 82% 7% 11% 135
Residential Care Facility / Assisted Living Facility 76% 7% 17% 225
Overall State Average 82% 4% 14% 1336
NCI-AD Weighted Average 74% 5% 21% 9896

Table 114. Are ever worried for the security of their personal belongings

Bar chart

Table

Program Yes, at least sometimes No, never N
Consumer Directed Services 9% 91% 292
Independent Living Waiver 6% 94% 183
Personal Care – Agency Model 12% 88% 269
Aged and Disabled Waiver 8% 92% 254
Adult Day Care Waiver 14% 86% 135
Residential Care Facility / Assisted Living Facility 26% 74% 232
Overall State Average 10% 90% 1365
NCI-AD Weighted Average 15% 85% 10188

Table 115. Someone used or took their money without their permission in the past 12 months

Bar chart

Table

Program Yes No N
Consumer Directed Services 4% 96% 292
Independent Living Waiver 4% 96% 181
Personal Care – Agency Model 9% 91% 264
Aged and Disabled Waiver 4% 96% 246
Adult Day Care Waiver 6% 94% 135
Residential Care Facility / Assisted Living Facility 7% 93% 228
Overall State Average 5% 95% 1346
NCI-AD Weighted Average 6% 94% 10050

Table 116. Feels safe around support staff

Bar chart

Table

Program Yes, all paid support workers, always No, not all workers, or not always N
Consumer Directed Services 98% 2% 161
Independent Living Waiver 97% 3% 116
Personal Care – Agency Model 97% 3% 168
Aged and Disabled Waiver 99% 1% 148
Adult Day Care Waiver 100% 0% 71
Residential Care Facility / Assisted Living Facility 89% 11% 113
Overall State Average 98% 2% 777
NCI-AD Weighted Average 96% 4% 5949

Rights and Respect

Table 117. Gets information about services in their preferred language (if preferred language is not English)

Proxy respondents were allowed for this question

Bar chart

Table

Program Yes, all information Some information No N
Consumer Directed Services 93% 7% 1% 107
Independent Living Waiver 100% 0% 0% 64
Personal Care – Agency Model 95% 2% 3% 94
Aged and Disabled Waiver 96% 2% 2% 101
Adult Day Care Waiver 97% 2% 2% 121
Residential Care Facility / Assisted Living Facility 95% 1% 4% 82
Overall State Average 94% 4% 2% 569
NCI-AD Weighted Average 84% 9% 7% 3738

Table 118. Services and supports are delivered in a way that is respectful of their culture

New question in 2021-2022

Bar chart

Table

Program Yes Sometimes or some services No N
Consumer Directed Services 99% 1% 0% 279
Independent Living Waiver 98% 1% 2% 176
Personal Care – Agency Model 97% 3% 0% 237
Aged and Disabled Waiver 96% 3% 1% 234
Adult Day Care Waiver 98% 1% 2% 131
Residential Care Facility / Assisted Living Facility 97% 2% 2% 263
Overall State Average 98% 2% 1% 1320
NCI-AD Weighted Average 96% 3% 1% 9067

Table 119. Paid support staff treat them with respect

Bar chart

Table

Program Yes, all paid support workers, always or or almost always Some, or usually No, never or rarely N
Consumer Directed Services 97% 2% 1% 159
Independent Living Waiver 97% 2% 2% 116
Personal Care – Agency Model 92% 7% 1% 169
Aged and Disabled Waiver 97% 1% 1% 148
Adult Day Care Waiver 97% 3% 0% 70
Residential Care Facility / Assisted Living Facility 83% 13% 4% 113
Overall State Average 96% 3% 1% 775
NCI-AD Weighted Average 92% 7% 1% 5939

Table 120. Other ask before coming into their home/room (if living in a group setting)

Bar chart

Table

Program Yes, always Usually, but not always Sometimes, rarely, or never N
Residential Care Facility / Assisted Living Facility 72% 15% 14% 234
Overall State Average 73% 15% 12% 248
NCI-AD Weighted Average 70% 19% 12% 1537
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Table 121. Able to lock doors to room (if living in a group setting)

Bar chart

Table

Program Yes No N
Residential Care Facility / Assisted Living Facility 50% 50% 224
Overall State Average 52% 48% 238
NCI-AD Weighted Average 59% 41% 1457
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Table 122. Has enough privacy where lives (if living in a group setting)

Bar chart

Table

Program Yes, always Usually, but not always Sometimes, rarely, or never N
Residential Care Facility / Assisted Living Facility 71% 15% 14% 231
Overall State Average 72% 16% 12% 245
NCI-AD Weighted Average 74% 16% 10% 1544
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Table 123. Can have visitors at any time (if living in a group setting)

Bar chart

Table

Program Yes No N
Residential Care Facility / Assisted Living Facility 67% 33% 227
Overall State Average 66% 34% 240
NCI-AD Weighted Average 71% 29% 1459
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Table 124. Can get something to eat or grab a snack anytime they (if living in a group setting)

Bar chart

Table

Program Yes No N
Residential Care Facility / Assisted Living Facility 72% 28% 231
Overall State Average 74% 26% 245
NCI-AD Weighted Average 86% 14% 1506
* The following programs had an N of less than 20 and were not shown: Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver

Person-Centered Planning (State Optional Module)

Table 125. Involvement in making decisions about what is in the service plan

Newly reported in 2021-2022

Bar chart

Table

Program Very or fully involved Somewhat Very little Not at all N
Consumer Directed Services 87% 11% 3% 0% 75
Independent Living Waiver 80% 16% 0% 4% 70
Personal Care – Agency Model 77% 15% 5% 3% 65
Aged and Disabled Waiver 78% 20% 0% 2% 59
Adult Day Care Waiver 89% 11% 0% 0% 35
Residential Care Facility / Assisted Living Facility 62% 10% 4% 24% 50
Overall State Average 82% 13% 2% 2% 354
NCI-AD Weighted Average 79% 17% 3% 1% 3018

Table 126. Service planning meeting took place at a time that was good for them

Newly reported in 2021-2022

Bar chart

Table

Program Yes No N
Consumer Directed Services 98% 2% 60
Independent Living Waiver 98% 2% 55
Personal Care – Agency Model 100% 0% 42
Aged and Disabled Waiver 100% 0% 51
Adult Day Care Waiver 100% 0% 26
Residential Care Facility / Assisted Living Facility 100% 0% 31
Overall State Average 99% 1% 265
NCI-AD Weighted Average 99% 1% 2331

Table 127. Service planning meeting took place in a place that was good for them

Newly reported in 2021-2022

Bar chart

Table

Program Yes No N
Consumer Directed Services 98% 2% 60
Independent Living Waiver 98% 2% 55
Personal Care – Agency Model 100% 0% 42
Aged and Disabled Waiver 100% 0% 52
Adult Day Care Waiver 100% 0% 26
Residential Care Facility / Assisted Living Facility 100% 0% 31
Overall State Average 99% 1% 266
NCI-AD Weighted Average 99% 1% 2328

Table 128. Service planning meeting included the people they wanted to be there

Newly reported in 2021-2022

Bar chart

Table

Program Yes Some People No N
Consumer Directed Services 95% 2% 3% 60
Independent Living Waiver 93% 2% 6% 54
Personal Care – Agency Model 97% 0% 3% 39
Aged and Disabled Waiver 100% 0% 0% 51
Adult Day Care Waiver 96% 0% 4% 26
Residential Care Facility / Assisted Living Facility 100% 0% 0% 31
Overall State Average 97% 1% 2% 261
NCI-AD Weighted Average 97% 1% 2% 2323

Table 129. People at the service planning meeting listened to needs and preferences

Newly reported in 2021-2022

Bar chart

Table

Program Completely Mostly Somewhat Very little Not at all N
Consumer Directed Services 73% 17% 7% 3% 0% 59
Independent Living Waiver 69% 22% 5% 0% 4% 55
Personal Care – Agency Model 85% 12% 2% 0% 0% 41
Aged and Disabled Waiver 77% 17% 6% 0% 0% 52
Adult Day Care Waiver 92% 8% 0% 0% 0% 26
Residential Care Facility / Assisted Living Facility 97% 3% 0% 0% 0% 31
Overall State Average 76% 16% 6% 2% 0% 264
NCI-AD Weighted Average 72% 21% 5% 1% 0% 2331

Table 130. Received a copy of the service plan after the service planning meeting

Newly reported in 2021-2022

Bar chart

Table

Program Yes No N
Consumer Directed Services 92% 8% 53
Independent Living Waiver 94% 6% 52
Personal Care – Agency Model 86% 14% 37
Aged and Disabled Waiver 90% 10% 41
Adult Day Care Waiver 91% 9% 22
Residential Care Facility / Assisted Living Facility 97% 3% 29
Overall State Average 91% 9% 234
NCI-AD Weighted Average 90% 10% 2134

Table 131. Service plan reflects what was talked about at the service plan meeting

Newly reported in 2021-2022

Bar chart

Table

Program Yes, completely Yes, in part No N
Consumer Directed Services 74% 22% 4% 54
Independent Living Waiver 84% 12% 4% 51
Personal Care – Agency Model 86% 14% 0% 36
Aged and Disabled Waiver 82% 18% 0% 40
Residential Care Facility / Assisted Living Facility 100% 0% 0% 31
Overall State Average 79% 19% 2% 231
NCI-AD Weighted Average 85% 13% 2% 2163
* The following programs had an N of less than 20 and were not shown: Adult Day Care Waiver

Table 132. Choices and preferences are reflected in current service plan

Bar chart

Table

Program Yes, completely Yes, in part No N
Consumer Directed Services 72% 23% 4% 69
Independent Living Waiver 78% 19% 3% 64
Personal Care – Agency Model 79% 21% 0% 58
Aged and Disabled Waiver 79% 21% 0% 47
Adult Day Care Waiver 88% 12% 0% 25
Residential Care Facility / Assisted Living Facility 92% 2% 5% 40
Overall State Average 76% 21% 3% 303
NCI-AD Weighted Average 78% 20% 2% 2793

Covid-19 Supplement (State Optional)

Table 133. Had to move due to COVID-19

Proxy respondents were allowed for this question

Bar chart

Table

Program No, did not have to move Yes, permanently Yes, temporarily and has not moved back to permanent residence Yes, temporarily and moved back to permanent residence Yes, unsure if temporary or permanent N
Consumer Directed Services 98% 1% 0% 1% 0% 290
Independent Living Waiver 96% 1% 0% 2% 0% 216
Personal Care – Agency Model 99% 0% 0% 1% 1% 320
Aged and Disabled Waiver 97% 1% 1% 0% 0% 296
Adult Day Care Waiver 97% 1% 0% 1% 0% 284
Residential Care Facility / Assisted Living Facility 100% 0% 0% 0% 0% 219
Overall State Average 98% 1% 0% 1% 0% 1625
NCI-AD Weighted Average 97% 1% 0% 1% 0% 11441

Table 134. There were changes to service and supports due to COVID-19

Proxy respondents were allowed for this question.

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Table

Program Yes No N
Consumer Directed Services 21% 79% 286
Independent Living Waiver 22% 78% 214
Personal Care – Agency Model 31% 69% 306
Aged and Disabled Waiver 25% 75% 278
Adult Day Care Waiver 40% 60% 283
Residential Care Facility / Assisted Living Facility 30% 70% 205
Overall State Average 24% 76% 1572
NCI-AD Weighted Average 31% 69% 10959

Table 135. Services and supports went back to how they were before COVID-19 (if there were changes due to COVID-19)

Proxy respondents were allowed for this question.

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Table

Program Yes, all services have gone back to how they were before covid-19 Some services have gone back No, no services have gone back to how they were before covid-19 Other N
Consumer Directed Services 40% 23% 37% 0% 57
Independent Living Waiver 36% 28% 36% 0% 47
Personal Care – Agency Model 34% 23% 43% 0% 94
Aged and Disabled Waiver 30% 22% 48% 0% 67
Adult Day Care Waiver 53% 19% 27% 1% 111
Residential Care Facility / Assisted Living Facility 51% 25% 25% 0% 53
Overall State Average 38% 23% 40% 0% 429
NCI-AD Weighted Average 40% 32% 28% 1% 3343

Table 136. Liked at least some of the changes to services and supports (if there were changes due to COVID-19)

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Table

Program Yes Some No N
Consumer Directed Services 16% 16% 67% 43
Independent Living Waiver 11% 11% 79% 38
Personal Care – Agency Model 17% 11% 71% 63
Aged and Disabled Waiver 15% 8% 77% 48
Adult Day Care Waiver 17% 8% 75% 36
Residential Care Facility / Assisted Living Facility 11% 0% 89% 37
Overall State Average 16% 12% 72% 265
NCI-AD Weighted Average 17% 21% 62% 2527

Table 137. Was able to keep changes to services they liked

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Table

Program Yes Some No N
Overall State Average 63% 24% 12% 58
NCI-AD Weighted Average 52% 34% 13% 907
* The following programs had an N of less than 20 and were not shown: Consumer Directed Services, Independent Living Waiver, Personal Care – Agency Model, Aged and Disabled Waiver, Adult Day Care Waiver, Residential Care Facility / Assisted Living Facility

Table 138. There were times when they did not have helped needed due to COVID-19

Proxy respondents were allowed for this question.

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Table

Program Yes Some No N
Consumer Directed Services 19% 9% 72% 279
Independent Living Waiver 22% 5% 73% 211
Personal Care – Agency Model 30% 8% 63% 304
Aged and Disabled Waiver 20% 8% 71% 284
Adult Day Care Waiver 32% 6% 62% 276
Residential Care Facility / Assisted Living Facility 10% 9% 82% 195
Overall State Average 21% 8% 71% 1549
NCI-AD Weighted Average 19% 7% 73% 10895

Table 139. Staff did things to keep them healthy and safe from COVID-19 like wash their hands, wear a mask, or help sanitize surroundings

Proxy respondents were allowed for this question.

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Table

Program Yes Sometimes, some staff No N
Consumer Directed Services 96% 1% 4% 273
Independent Living Waiver 96% 1% 2% 206
Personal Care – Agency Model 94% 4% 3% 293
Aged and Disabled Waiver 96% 2% 3% 261
Adult Day Care Waiver 97% 1% 2% 275
Residential Care Facility / Assisted Living Facility 90% 8% 2% 205
Overall State Average 95% 2% 3% 1513
NCI-AD Weighted Average 93% 4% 3% 10699

Table 140. Can get supplies to stay healthy and safe from COVID-19 like masks, or hand sanitizer

Proxy respondents were allowed for this question.

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Table

Program Yes Sometimes, some supplies No N
Consumer Directed Services 94% 2% 4% 278
Independent Living Waiver 92% 5% 2% 205
Personal Care – Agency Model 95% 4% 1% 296
Aged and Disabled Waiver 94% 4% 2% 266
Adult Day Care Waiver 95% 2% 2% 282
Residential Care Facility / Assisted Living Facility 94% 5% 1% 204
Overall State Average 94% 3% 3% 1531
NCI-AD Weighted Average 94% 3% 3% 10916

Table 141. Received a COVID-19 vaccine

Proxy respondents were allowed for this question; note, booster shots were not available at the time survey was developed

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Table

Program Yes, fully vaccinated Yes, partially No N
Consumer Directed Services 70% 5% 25% 294
Independent Living Waiver 59% 2% 39% 218
Personal Care – Agency Model 76% 2% 22% 325
Aged and Disabled Waiver 75% 3% 22% 287
Adult Day Care Waiver 80% 3% 17% 291
Residential Care Facility / Assisted Living Facility 92% 0% 7% 211
Overall State Average 73% 4% 23% 1626
NCI-AD Weighted Average 82% 2% 16% 11357

Table 142. Can get a COVID-19 vaccine if they want it (if they were not fully vaccinated)

Proxy respondents were allowed for this question

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Table

Program Yes No N
Consumer Directed Services 88% 12% 85
Independent Living Waiver 85% 15% 86
Personal Care – Agency Model 85% 15% 75
Aged and Disabled Waiver 92% 8% 73
Adult Day Care Waiver 87% 13% 52
Overall State Average 89% 11% 389
NCI-AD Weighted Average 91% 9% 2052
* The following programs had an N of less than 20 and were not shown: Residential Care Facility / Assisted Living Facility

Table 143. Were satisfied with the response of service providers during COVID-19

Proxy respondents were allowed for this question

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Table

Program Yes Sometimes, some providers No N
Consumer Directed Services 90% 6% 4% 218
Independent Living Waiver 88% 8% 4% 161
Personal Care – Agency Model 81% 12% 6% 216
Aged and Disabled Waiver 90% 6% 3% 186
Adult Day Care Waiver 86% 10% 4% 110
Residential Care Facility / Assisted Living Facility 94% 6% 0% 171
Overall State Average 89% 7% 4% 1062
NCI-AD Weighted Average 83% 12% 5% 8423