What is NCI-AD?

Establish in 2015, National Core Indicators—Aging and Disabilities™ (NCI-AD™) is a voluntary effort by state aging and physical disability agencies to measure and track their performance using a standardized set of nationally validated measures. The effort is coordinated by Advancing States and Human Services Research Institute (HSRI). Learn more about our history here.

In 2021-22 a total of 19 states participated in NCI-AD. Not all participating states do all surveys every year.

What is the NCI-AD
Adult Consumer Survey?

The NCI-AD Adult Consumer Survey (ACS), is standardized survey conducted with a person receiving long term services and supports (LTSS) through state aging and physical disability systems. Surveys are conducted by trained surveyors through in-person, secure video meeting, or over-the-phone conversations with service participants. The main part of the survey contains subjective questions about how well services are supporting the person; these can only be answered by the person themselves. A subset of more objective questions may be answered by a proxy respondent if needed. In addition to the questions for service participants, the survey also collects background information on the person –demographic and service-related data – mainly from service agency records. In 2021-22, the survey included two state-optional modules:

Person-Centered Planning Module. This is a series of questions that ask about the person-centered planning process, including the person’s experience developing the service plan and the service planning meeting. The following states conducted the Person-Centered Planning Module: CO, DE, GA, IN, KS, MI, MN, MO, NJ, OK, TX, WA, WI.

COVID-19 Supplement. This included a series of questions of the person’s experience with services during COVID-19 and the overall impact of the pandemic on the person’s life. The following states conducted the COVID-19 Supplement: CO, DE, GA, IN, KS, MI, MN, MO, NJ, OK, TX, WA, WI.

Sampling

There is considerable variation in how states’ long-term services and supports (LTSS) programs serving older adults and adults with physical disabilities are organized, funded, and administered. The NCI-AD program allows states to include programs funded through Medicaid, the Older Americans Act, Program of All-Inclusive Care for the Elderly (PACE), state-only funds, and/or other state- and federal-blended funds. The NCI-AD project team works closely with each participating NCI-AD state to advise and track which LTSS program populations and sub-populations are included in the state’s sampling strategy, how that sample is designed and how many surveys are targeted for completion. See detailed information on state sample frames here.

Wisconson Specific Sample

Total Sample Frame: 49621

Total surveys completed: 1313

Overall Margin of Error 2.67%

Program Category

Table 1. Classification of 2021-22 State programs

STATE Program Funding Source Description of Program Total Population Eligible for NCI-AD Total Usable Surveys Collected MoE (95%Confidence, 0.5 Distribution) MoE (95%Confidence, 0.7 Distribution)
WI Family Care HCBS waiver and Medicaid State Plan (1915 b/c waiver) Both MLTSS and provide waiver and state plan LTSS for elderly and adults with physical disabilities. The main distinction is Partnership additionally provides acute and primary services via managed care. 27189 460 4.57% 4.19%
WI Partnership Medicaid Waiver 1915(c) Both MLTSS and provide waiver and state plan LTSS for elderly and adults with physical disabilities. The main distinction is Partnership additionally provides acute and primary services via managed care. 2671 77 11.17% 10.24%
WI IRIS Medicaid Waiver 1915(c) HCBS waiver (1915c); IRIS participants also receive Medicaid State Plan Services Both MLTSS and provide waiver and state plan LTSS for elderly and adults with physical disabilities. The main distinction is Partnership additionally provides acute and primary services via managed care. 12653 562 4.13% 3.79%
WI PACE Medicaid (PACE program has different federal authority, but similar HCBS services are included) Both MLTSS and provide waiver and state plan LTSS for elderly and adults with physical disabilities. The main distinction is Partnership additionally provides acute and primary services via managed care. 415 4 49.00% 44.91%
WI Long-Stay FFS Medicaid Nursing Home Residents Medicaid State Plan Nursing home residents whose nursing home care is paid for by Fee For Service Medicaid and have been in the nursing home for at least 100 days according to the admission date in their most recent Minimum Data Set assessment information, excluding residents of state Veteran’s Homes, residents with intellectual or developmental disabilities, and residents whose nursing home care is for a traumatic brain injury. 6693 210 6.76% 6.20%

What is included in this report?

This report presents Wisconson 2021-22 ACS demographics and outcomes results. Data are shown for the overall statewide average, broken out by program sampled, and include the weighted NCI-AD Average.

Please note: Extreme caution should be used when interpreting results where the number of valid responses is small. Each program’s valid number of responses (valid Ns) is shown in every chart and table in this report.

To protect people’s privacy we do not show the data when 20 or fewer people from a state or within a program responded to a question, however their data are included in the overall state average.

Presentation of Data

Data may be viewed as bar charts or in tables by clicking the appropriate tab for each outcome. Data presented in charts are “collapsed” meaning that data grouped by response options to what is considered to reflect a positive outcome and all other responses. Tables represent the un-collapsed data outcomes.

All NCI-AD data are collapsed “yes” responses only, unless otherwise noted.

All state and NCI-AD averages throughout this report are “weighted” to account for any non-proportional sampling of programs and to “rebalance” the states’ sample sizes according to their populations of survey-eligible service recipients. See more details on weighting in Part II of this report.

Results

Demographics

Table 2. Average age (reported for those under 90 years old)

Program Age N
Family Care 64.7 446
Partnership 61.1 76
IRIS 61.3 554
Long-Stay FFS Medicaid Nursing Home Residents 74.3 167
Overall State Average 64.7 1247
NCI-AD Weighted Average 66.8 12847
* The following programs had an N of less than 20 and were not shown: PACE

Table 3. Age Category (including those 90 and older)

Program 18-44 45-64 65-89 90+ N
Family Care 7% 42% 48% 3% 460
Partnership 16% 40% 43% 1% 77
IRIS 10% 45% 44% 1% 562
Long-Stay FFS Medicaid Nursing Home Residents 1% 12% 67% 20% 210
Overall State Average 7% 38% 50% 5% 1313
NCI-AD Weighted Average 8% 27% 58% 6% 13593
* The following programs had an N of less than 20 and were not shown: PACE

Table 4. Gender

Program Male Female Other Don’t know or unclear N
Family Care 34% 66% 0% 0% 460
Partnership 30% 70% 0% 0% 77
IRIS 34% 66% 0% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 38% 62% 0% 0% 210
Overall State Average 35% 65% 0% 0% 1313
NCI-AD Weighted Average 32% 68% 0% 0% 13595
* The following programs had an N of less than 20 and were not shown: PACE

Table 5. Race and ethnicity

Program American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other Don’t know Unclear/Refused/No Response N
Family Care 2% 0% 18% 0% 79% 5% 0% 0% 0% 460
Partnership 1% 0% 23% 0% 73% 5% 0% 1% 0% 77
IRIS 1% 2% 51% 0% 42% 9% 1% 1% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 0% 0% 2% 0% 83% 2% 0% 11% 0% 210
Overall State Average 2% 1% 25% 0% 69% 5% 0% 2% 0% 1313
NCI-AD Weighted Average 2% 5% 23% 0% 60% 9% 2% 3% 2% 13134
* The following programs had an N of less than 20 and were not shown: PACE

Table 6. Marital Status

Program Single, never married Married or in domestic partnership Separated or divorced Widowed Don’t know or unclear N
Family Care * 13% 18% 27% 17% 25% 460
Partnership 40% 12% 23% 9% 16% 77
IRIS 31% 18% 27% 12% 12% 562
Long-Stay FFS Medicaid Nursing Home Residents 16% 22% 23% 36% 4% 210
Overall State Average 20% 18% 26% 17% 19% 1313
NCI-AD Weighted Average 28% 15% 27% 25% 4% 13114
The following programs had an N of less than 20 and were not shown: PACE

Table 7. Preferred Language

Program English Spanish Other Don’t know or unclear N
Family Care 96% 2% 0% 1% 460
Partnership 100% 0% 0% 0% 77
IRIS 92% 7% 1% 1% 562
Long-Stay FFS Medicaid Nursing Home Residents 100% 0% 0% 0% 210
Overall State Average 96% 3% 0% 1% 1313
NCI-AD Weighted Average 89% 4% 7% 0% 13409
* The following programs had an N of less than 20 and were not shown: PACE

Table 8. Residential Designation

Categories created using zip codes and corresponding RUCA codes

Program Metropolitan Micropolitan Rural Small Town N
Family Care 63% 11% 10% 16% 460
Partnership 94% 4% 0% 3% 77
IRIS 81% 4% 7% 8% 562
Long-Stay FFS Medicaid Nursing Home Residents 43% 18% 10% 28% 210
Overall State Average 67% 9% 9% 15% 1313
NCI-AD Weighted Average 72% 14% 6% 9% 13085
* The following programs had an N of less than 20 and were not shown: PACE

Table 9. Median Income (based on zip code)

Newly reported in 2021-2022

Program $0- $9,999 $10,000- $19,999 $20,000- $29,999 $30,000- $39,999 $40,000- $49,999 $50,000- $59,999 $60,000- $69,999 $70,000- $79,999 $80,000- $89,999 $90,000- $99,999 $100,000 and over N
Family Care 0% 1% 6% 18% 42% 17% 12% 3% 1% 0% 0% 456
Partnership 0% 5% 9% 4% 4% 13% 31% 26% 8% 0% 0% 77
IRIS 0% 0% 9% 40% 28% 13% 6% 2% 1% 0% 1% 562
Long-Stay FFS Medicaid Nursing Home Residents 0% 0% 2% 22% 50% 16% 8% 2% 0% 0% 0% 210
Overall State Average 0% 1% 7% 24% 37% 15% 11% 4% 1% 0% 0% 1309
NCI-AD Weighted Average 0% 1% 9% 27% 27% 16% 9% 5% 3% 1% 1% 12977
* The following programs had an N of less than 20 and were not shown: PACE

Table 10. Type of Residence

Program Own or family house or apartment Senior living apartment or complex Group home, adult family home, foster home, host home Assisted living facility, residential care facility Nursing facility, nursing home Homeless or temporary shelter Other Don’t know or unclear N
Family Care 75% 4% 3% 12% 5% 0% 0% 0% 460
Partnership 86% 3% 4% 6% 0% 0% 0% 1% 77
IRIS 99% 0% 1% 0% 0% 0% 0% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 0% 0% 0% 0% 100% 0% 0% 0% 210
Overall State Average 71% 2% 2% 7% 16% 0% 0% 0% 1313
NCI-AD Weighted Average 76% 7% 2% 7% 6% 0% 2% 1% 13448
* The following programs had an N of less than 20 and were not shown: PACE

Table 11. Who the person lives with

Program No One – Lives Alone Spouse or Partner Other Family Friend(s) Live-in PCA Others Don’t know or unclear N
Family Care 44% 17% 19% 2% 4% 17% 0% 443
Partnership 45% 18% 21% 3% 5% 14% 0% 73
IRIS 32% 25% 42% 2% 8% 2% 0% 527
Long-Stay FFS Medicaid Nursing Home Residents 17% 2% 1% 0% 19% 59% 0% 200
Overall State Average 37% 17% 22% 2% 7% 19% 0% 1245
NCI-AD Weighted Average 47% 13% 28% 2% 2% 9% 1% 13355
* The following programs had an N of less than 20 and were not shown: PACE

Table 12. Address Change

Program Yes No Don’t know or unclear N
Family Care 7% 93% 0% 443
Partnership 19% 81% 0% 73
IRIS 5% 95% 0% 524
Long-Stay FFS Medicaid Nursing Home Residents 4% 96% 1% 197
Overall State Average 7% 93% 0% 1239
NCI-AD Weighted Average 6% 92% 2% 12980
The following programs had an N of less than 20 and were not shown: PACE
Program No Yes N
Family Care 93% 7% 443
Partnership 81% 19% 73
IRIS 95% 5% 524
Long-Stay FFS Medicaid Nursing Home Residents 96% 4% 196
Overall State Average 93% 7% 1238
NCI-AD Weighted Average 94% 6% 12752
The following programs had an N of less than 20 and were not shown: PACE

Table 13. Where people moved from (if moved in the last 6 months)

Program Own or family house or apartment Senior living apartment or complex Group home, adult family home, foster home, host home Assisted living facility, residential care facility Nursing facility, nursing home Homeless or temporary shelter Other Don’t know or unclear N
Family Care 64% 3% 6% 9% 9% 3% 6% 0% 33
IRIS 82% 0% 0% 0% 4% 7% 7% 0% 28
Overall State Average 67% 3% 4% 9% 8% 4% 5% 0% 82
NCI-AD Weighted Average 63% 5% 4% 5% 5% 3% 14% 1% 689
* The following programs had an N of less than 20 and were not shown: Partnership, Long-Stay FFS Medicaid Nursing Home Residents

Table 14. Diagnoses

All categories except ‘physical disability’, ‘intellectual or other developmental disability’, and ’Alzheimer’s disease or other dementia are new in 2021-22. Categories are not mutually exclusive; therefore, N is not shown.

Program Physical Disability Traumatic brain injury or other acquired brain injury Intellectual or other developmental disability Alzheimer’s disease or dementia Heart Disease Cancer Chronic Obstructive pulmonary disease (COPD) Stroke Diabetes Hypertension (or high blood pressure
Family Care 50% 3% 0% 17% 57% 10% 29% 20% 41% 67%
Partnership 57% 6% 0% 13% 53% 9% 21% 17% 47% 61%
IRIS 57% 2% 0% 4% 46% 10% 24% 17% 44% 70%
PACE NA NA NA NA NA NA NA NA NA NA
Long-Stay FFS Medicaid Nursing Home Residents 0% 1% 2% 40% 44% 5% 24% 20% 36% 76%
Overall State Average 45% 2% 0% 17% 52% 10% 27% 20% 41% 68%
NCI-AD Weighted Average 70% 11% 8% 11% 33% 12% 23% 20% 37% 60%

Table 15. Person has chronic psychiatric or mental health diagnosis

Program Yes No Don’t know or unclear N
Family Care 68% 32% 0% 460
Partnership 78% 22% 0% 77
IRIS 57% 43% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 67% 30% 4% 210
Overall State Average 66% 34% 1% 1313
NCI-AD Weighted Average 35% 61% 3% 12828
* The following programs had an N of less than 20 and were not shown: PACE

Table 16. Level of Mobility

Categories are not mutually exclusive (except ‘Don’t know or unclear or unclear’).

Program Non-Ambulatory Moves self with wheelchair Moves self with other aids Moves self without aids Don’t know or unclear N
Family Care 3% 24% 63% 41% 0% 443
Partnership 1% 38% 71% 25% 0% 73
IRIS 3% 20% 75% 33% 0% 527
PACE NA NA NA NA NA 2
Long-Stay FFS Medicaid Nursing Home Residents 22% 50% 33% 4% 0% 200
Overall State Average 6% 27% 62% 33% 0% 1245
NCI-AD Weighted Average 8% 21% 53% 27% 8% 13086

Table 17. Has history of frequent falls (more than two falls in a six-month period)

Program Yes No Don’t know or unclear N
Family Care 24% 76% 0% 443
Partnership 35% 65% 0% 72
IRIS 23% 77% 0% 524
Long-Stay FFS Medicaid Nursing Home Residents 20% 78% 3% 196
Overall State Average 24% 76% 0% 1237
NCI-AD Weighted Average 28% 70% 1% 12866
The following programs had an N of less than 20 and were not shown: PACE

Table 18. Receives Medicare

Program Yes No Don’t know or unclear N
Family Care 84% 16% 0% 460
Partnership 82% 18% 0% 77
IRIS 74% 26% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 93% 7% 0% 210
Overall State Average 83% 17% 0% 1313
NCI-AD Weighted Average 79% 18% 3% 12473
* The following programs had an N of less than 20 and were not shown: PACE

Table 19. Length of time receiving LTSS services in current program

Program 0 - 5 months 6 months – less than 1 year 1 year – less than 3 years 3 or more years Don’t know or unclear N
Family Care 5% 13% 29% 54% 0% 460
Partnership 3% 9% 21% 68% 0% 77
IRIS 11% 18% 36% 35% 0% 562
Long-Stay FFS Medicaid Nursing Home Residents 20% 15% 34% 31% 0% 210
Overall State Average 8% 14% 31% 47% 0% 1313
NCI-AD Weighted Average 7% 6% 28% 54% 5% 11942
* The following programs had an N of less than 20 and were not shown: PACE

Outcome Tables and
Comparisons across Programs

Community Participation

Table 21. Gets to do things outside of their home as much as they want to

Bar chart

Table

Program Yes No N
Family Care 63% 37% 386
Partnership 58% 42% 69
IRIS 68% 32% 493
Long-Stay FFS Medicaid Nursing Home Residents 47% 53% 144
Overall State Average 62% 38% 1096
NCI-AD Weighted Average 62% 38% 9950
* The following programs had an N of less than 20 and were not shown: PACE

Table 22. Takes part in activities with others as much as they want to (in-person or virtually)

Question changed in 2021-22

Bar chart

Table

Program Yes Sometimes No N
Family Care 53% 10% 38% 389
Partnership 38% 7% 55% 69
IRIS 63% 9% 28% 491
Long-Stay FFS Medicaid Nursing Home Residents 58% 10% 32% 143
Overall State Average 55% 9% 36% 1095
NCI-AD Weighted Average 58% 11% 31% 9904
* The following programs had an N of less than 20 and were not shown: PACE

Table 23. Reasons cannot always take part in activities with others as much as they want to (in-person or virtually)

Bar chart