History

The National Core Indicators-Aging and Disabilities (NCI-AD) project grew out of state aging and disabilities agencies’ desire for quantifiable data on the performance of their publicly funded programs for older adult and individuals with physical disabilities.   Such data have been available for states’ intellectual/developmental disabilities (I/DD) service systems through the National Core Indicators (NCI) project for the past 18 years.  NCI-AD is designed to assess the performance of the entirety of a state’s publicly funded programs for older adults and people with physical disabilities by collecting and maintaining valid and reliable data on service participants’ quality of life and outcomes.

Since 2012, the National Association of States United for Aging and Disabilities (NASUAD) has been working in collaboration with Human Services Research Institute (HSRI), as well as the National Association of State Directors of Developmental Disabilities Services (NASDDDS) to   develop the NCI-AD Consumer Survey.

NASUAD’s Board of Directors voted to begin work on the NCI-AD project in late 2012.  In June 2013, NASUAD and HSRI, with help from the NCI-AD steering committee (comprised of NASUAD board members) and NASDDDS, began amending the Adult Consumer Survey portion of the NCI tool to better align with the priorities of aging and disability service users and systems.  By the end of 2013, the initial survey draft had been revised seven times, based on feedback gathered from the steering committee, stakeholder groups, national-level partners, subject-matter experts, focus groups comprised of older adults and individuals with physical disabilities being served by their state systems, and a pre-pilot test with service participants in Maine.  

In early 2014, Georgia, Minnesota, and Ohio piloted the NCI-AD Consumer Survey.  By the end of August 2014, all three pilot states finished collecting their data.  Project team compiled data from the three pilot states in the NCI-AD Final Pilot Results report.

NASUAD, HSRI, and the NCI-AD Steering Committee worked with stakeholders to revise the survey based on the pilot experience.  In January 2015, the project team conducted a small sample pilot of the revised survey with participants in Georgia.  The survey was revised again based on this pilot and finalized in March 2015. 

Development of the NCI-AD tool was supported by NASUAD members and the Administration for Community Living (ACL).