National Core Indicators and Self-Direction: What do the data show?

Apr 23rd, 2025

This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.

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