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NCI Data Used by Self-Advocates and Families
Feb 3rd, 2011 by | No Comments YetHSRI and NASDDDS staff were in the beautiful state of Washington last week to observe Lisa Weber and the rest of the WA NCI team in action. Part of the agenda included attending a DD Council focus group meeting. This meeting was made up of self-advocates, family members of children with developmental disabilities, and DD Council staff, and was the second in a three-part series where NCI data was reviewed in order to make policy recommendations to the Divison of Developmental Disabilities (DDD). The group reviewed 2008-09 Child Family Survey data which was organized where the WA data could be compared to the "NCI average", as well as compared to WA data from previous years.
Each of the self-advocates and family members contributed greatly during the meeting. Some of the main topic areas discussed were: information regarding services and process, computer technology in service information and service use, and community inclusion.
In the upcoming weeks, the group will be finalizing their recommendations to the DDD. We would like to thank the DD Council and the DDD for allowing us to be part of this meeting. We were very honored to hear the shared stories and experiences of the group, and are very proud that NCI data is being used in order to create positive change.
If you would like further information on this group and how Washington uses NCI data, please contact me at jengler@hsri.org.
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NCI Presented at International Disability Conference
Jan 6th, 2011 by | No Comments YetHSRI's Val Bradley and Sarah Taub recently attended the 2010 International Association for the Scientific Study of Intellectual Disabilities (IASSID) in Rome, Italy. They presented on preventative health care outcomes which primarily came from data from many of the new Health indicators that were added beginning in the 2008-09 data cycle.
One of the more interesting findings was that individuals who resided with their families and in other community-based settings were not as likely to receive preventative health screenings (e.g., colorectal exams, eye exams) as those in institutional settings.
Val and Sarah (and co-author Julie Bershadsky) are writing a paper on these findings and their peer-reviewed abstract has been published in the Journal of Applied Research in Intellectual Disabilities:
Bradley, V., Taub, S., & Bershadsky, J. (2010). Using consumer survey data in the USA. (Abstract). Journal of Applied Research in Intellectual Disabilities, 23(5), 469.
For more information regarding Val and Sarah's presentation or the preventative health care paper, please contact Josh Engler at jengler@hsri.org.