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NCI Data: Rights/Respect
Oct 11th, 2012 by | No Comments YetThe NCI sub-domain entitled “Rights/Respect” was designed based on the idea that the protection and affirmation of an individual’s rights is a critical gauge of service quality. The NCI Adult Consumer Survey uses several questions to ascertain whether the respondent receives the same respect and protections as others in the community.
The rights/respect section of NCI identifies:
1. The proportion of people whose basic rights are not respected by others, including (a) having one’s mail opened without permission, (b) having restrictions on being alone with others, (c) having restrictions on using the phone, and having people enter their (d) home and (e) bedroom without permission.
2. The proportion of people who have participated in a self-advocacy group meeting, conference, or event.
3. The proportion of people who report satisfaction with the amount of privacy they have.
4. The proportion of people indicating that most (a) day, (b) work, and (c) home support staff treat them with respect.
Here is a selection of national results from the 2010-2011 Adult Consumer Survey:
Indicator
N
Overall
In Institution
In Community Based
In Individual Home
In Parent's Home
Home is entered without permission
5675
10%
10%
13%
8%
7%
Bedroom is entered without permission
5642
15%
8%
16%
11%
18%
Mail is opened without permission
7266
12%
6%
11%
10%
15%
Can be alone with visitors at home
7463
83%
89%
84%
91%
81%
Allowed to use phone/internet when desired
6749
91%
86%
89%
97%
90%
Have participated in a self-advocacy event
6541
31%
28%
33%
39%
23%
Have enough privacy at home
5372
91%
86%
87%
94%
93%
Staff at home is nice and polite.
3985
94%
89%
93%
94%
96%
Staff at work is nice and polite
967
96%
n/a
95%
90%
97%
Staff at day program is nice and polite
3721
95%
94%
95%
94%
96%
Interestingly, many of the results seem to be affected by the residential situation of the respondent. For example, 86% of respondents living in an institutional setting say that they are allowed to use the phone/internet when they want, compared with 90% of those who live in their parent’s home. Fifteen percent of respondents living in their parent’s home claim that their mail is opened without permission, while only 6% of respondents living in institutional settings assert that their mail is opened without permission. 23% of respondents living in their parent’s home have participated in a self-advocacy event, compared with the national average of 31%. Eighty-six percent of respondents living in an institutional setting assert that they have enough privacy at home, compared to the national average of 91%.
States can use national and state-specific data on rights and respect towards many ends. Results on this sub-domain can be used as an outcome measure in assessments of service quality. For example, The Massachusetts Department of Developmental Services (DDS) compiled a Quality Assurance Brief (QAB) entitled “Protection and Affirmation of Rights.” (http://www.mass.gov./eohhs/docs/dmr/qa-assurance-brief-v1i3.pdf). Mass. DDS has established a set of outcomes that form a basis for assessing service quality. This QAB uses NCI data and data gathered from licensure and certification reviews to evaluate whether the state is fulfilling the outcome of protecting and affirming the rights of those receiving services. At the end of the QAB, Massachusetts DDS has identified ways in which it will follow up and implement quality improvement initiatives and activities.
For more data on rights/respect and other indicators, see the ‘Reports” page at http://www.nationalcoreindicators.org/resources/. And, as always, we would love to see what you are doing with NCI data. Let us know by sending an email to dhiersteiner@hsri.org.
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What We Learned from the NCI Adult Consumer Survey
Oct 5th, 2012 by | No Comments YetNCI is excited to introduce a new User-Friendly version of the Consumer Outcomes Report. The Report uses plain language and pictures to describe select items from the Consumer Outcomes Report. We owe a great thanks to California’s Consumer Advisory Committee (CAC) who were instrumental in helping develop this new way of presenting NCI data.
The inaugural “What We Have Learned from the NCI Adult Consumer Survey” shows 2010-11 National NCI data. In future years, along with the national report, each state will receive its own report showing the state’s specific data. The User-Friendly Reports will be released with the national data and located on the NCI website under the User-Friendly Reports section of the Reports Page.
Thanks again to the CAC! We look forward to getting your feedback
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Updates on the NCI blog, Facebook and Twitter
Aug 20th, 2012 by | No Comments YetHi everyone. My name is Dorothy and I am new to the HSRI NCI team. I am a research assistant, and I spend the majority of my time working with your data.
I am dedicated to the idea that data and information can be used to influence positive change through public policy. I also believe that the dissemination of this information can aid in the policy process by raising public awareness and creating social movements. For that reason, when Josh approached me about contributing to the NCI blog and working on the (soon to be launched) NCI Facebook and Twitter accounts, I accepted with excitement.
I see social media and networking as a forum for the free exchange of ideas and information. As a result, I hope you will participate in the process! I would love to share any ideas you have, achievements you have made either individually or as a state, or setbacks you have encountered while working on NCI, advocating for policy, or providing services to individuals with ID/DD.
Here is what I envision:
NCI Blog: The blog will be focused on NCI-related information and news. I see the blog as a place to share NCI-state successes, obstacles, questions, etc. In addition, I will post articles of interest and prompt discussion. Guest bloggers may make appearances.
NCI Facebook Page and Twitter (https://www.facebook.com/nationalcoreindicators): The Facebook page and forthcoming Twitter will feature relevant articles, images and information about upcoming events such as conferences, meetings or webinars. Please become a "fan" as soon as possible.
I am looking forward to blogging, Facebooking and Tweeting. Please comment or email me (dhiersteiner@hsri.org) with comments or suggestions.
Best,
Dorothy
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Meeting People
Apr 4th, 2012 by | No Comments YetNASDDDS and HSRI staff spent some time this past winter travelling to and fro and visiting states that have recently joined NCI. These visits included interviewer trainings, getting great advice from self-advocates, meeting hard-working state staff, and checking out some hidden jewels in some of this nation’s most interesting state capitals (including the state house in Richmond, taxi cab drivers in Columbia, and Clara’s Restaurant in Lansing).
On the work-related front:
- In Connecticut, we heard from many self-advocates who had previous experience in administering the adult consumer survey back when the state was last in NCI in 2008. They gave great advice to us and the other interviewers. In particular, one young lady asked us all to place ourselves in the shoes of the person being interviewed- to think how it would feel for a stranger to come into your home or place of work and already know so much personal information about you. Most of us would probably be nervous, so this young lady stressed how important it is for the interviewers to make the individual feel comfortable and to explain in clear detail what the survey is all about.
- On a lighter note, in South Carolina a couple of interviewers who had previous experience administering the consumer surveys told us some of their more hilarious experiences. One woman described how she was conducting a survey on someone’s front porch and for whatever reason the chair she was sitting in starting to sink close to the ground. This interviewer was unaware however and the only thing she noticed was it seemed like the individual across from her was rising and then levitating. Another young woman told the story of showing up for a survey in a rural community and after ringing the house bell, the door opens and a rooster comes running out past her and into the yard.
Who said that NCI can’t be entertaining.