Data Briefs

• National Core Indicators and Self-Direction: What Do the Data Show?

  04/2025

  This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.

  • National Core Indicators and Self-Direction: What Do the Data Show?

• What NCI Data Reveal About Service Delivery and the Respect Given to the Rights of People With I/DD

  4/2015
  • 2015 Data Brief: What NCI Data Reveal About Service Delivery and the Respect Given to the Rights of People With I/DD

• What Do NCI Data Reveal About Individuals With ID/DD Who Need Behavior Support?

  5/2014
  • 2014 Data Brief - Behavior Support

• Working in the Community: the Status and Outcomes of People with Intellectual and Developmental Disabilities in Integrated Employment – an Update

  2/2014
  • Working in the Community: the Status and Outcomes of People with Intellectual and Developmental Disabilities in Integrated Employment

• What Do NCI Data Reveal About Individuals With Intellectual and Developmental Disabilities Who Communicate Nonverbally?

  01/2014
  • 2014 Data Brief - Nonverbal Communication

• What do NCI data tell us about the racial and ethnic disparities in healthcare utilization experienced by adults with intellectual and developmental disabilities?

  12/2013
  • 2013 Data Brief - Race and Ethnicity and Preventive Healthcare

• What does NCI tell us about adults with intellectual and developmental disabilities who are taking prescribed medications for anxiety, behavior challenges, mood disorders or psychotic disorders?

  12/2012
  • 2012 Data Brief - Psychotropic Medication

• Working in the community: The status and outcomes of people with ID/DD in integrated employment

  10/2012
  • 2012 Data Brief- Employment Outcomes

• What does NCI tell us about older adults with intellectual and developmental disabilities?

  8/2011
  • 2011 Data Brief- Older Adults

• What does NCI tell us about people who self-direct?

  4/2011
  • 2011 Data Brief- Self-Direction

• What does NCI tell us about people with dual diagnosis?

  4/2011
  • 2011 Data Brief- Dual Diagnoses

• What does NCI tell us about people with autism? – An update

  4/2011
  • 2011 Data Brief- Autism

• What work means: What does NCI tell us about the quality of life of adults with intellectual and developmental disabilities who are employed in the community?

  12/2011
  • 2011 Data Brief- Employment: What Work Means

• What does NCI tell us about adults with disabilities who live at home?

  11/2010
  • 2010 Data Brief- People Who Live at Home