Data Briefs

  • Care that Counts: Measuring the Quality of Paid Family Caregiving Among HCBS Users Through NCI-AD 2023-24

    3/2026

    “Care that Counts” is a new study about paid family caregiving from researchers with National Core Indicators-Aging and Disabilities (NCI-AD). The goal of the study was to better understand how caregiving is associated with the quality of life of people who use home and community-based services (HCBS). Specifically, researchers wanted to learn whether certain types of caregiving are associated with better experiences.

  • National Core Indicators and Self-Direction: What Do the Data Show?

    04/2025

    This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.