News
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National Core Indicators and Self-Direction: What do the data show?
Apr 23rd, 2025This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.
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ODESA 2.0
Apr 2nd, 2025NCI is excited to announce the launch of the improved ODESA 2.0 platform this summer.
ODESA 2.0 will be used to collect and store NCI survey data.
While the new system retains many features of the current data collection system, ODESA 2.0 will offer:- A refreshed design
- New features
- Enhanced security
This new platform will be used to collect and submit data for the following surveys in the 2025-26 data cycle:
- NCI-AD Adult Consumer Survey
- NCI-IDD In Person Survey (IPS) and
- NCI-IDD family surveys (AFS, FGS, CFS)
Stay tuned for more information on ODESA 2.0!
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Sarah Taub 2025 Webinar
Feb 4th, 2025
The 2025 Sarah Taub Memorial NCI Webinar – Empowering Choice: Exploring Self-Direction Experience and Outcomes among National Core Indicators Respondents – was presented on January 29, 2025.
National Core Indicators (NCI) is the most comprehensive and representative source of data on the characteristics and outcomes of people with disabilities and older adults who use long-term services and supports (LTSS). In 2022-2023, NCI surveyed over 40,000 older adults and people with disabilities using state-funded long-term services and supports. Our team was joined by panelists from Applied Self Direction and state partners to showcase data that explores choice and control, with a focus on self-direction data and the outcomes and experiences of those self-directing their services who participate in both the NCI-IDD and NCI-AD surveys.
The findings shared in this webinar can improve understanding of where there are gaps in access to and quality of supports for self-direction, and can be used to inform LTSS policy and practice.Click on the links below to access recordings and additional resources from the webinar:
- Webinar recording (YouTube)
- Webinar slides (PPT)
- Webinar slides (PDF)
- Webinar transcript
- Webinar recording (Spanish)
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NCI-AD Team Presents at HCBS Conference 2023
Sep 14th, 2023
The NCI-AD team participated in several presentations at the HCBS conference including “So You Think You Can Stratify” about state sampling stratification strategies and “The HCBS Quality Measure Set: A Blueprint to Comply with the Access Rule & Raise Service Quality in Your State” on considerations around the Access Rule NPRM. A third presentation “Data to Innovate, Inform, and Influence: How States are Using NCI-AD for HCBS & DSW Policy and Planning” discussed ways to use NCI-AD data to support quality improvement initiatives, representatives from two states (ND and CO) discussed ways their states are currently using NCI-AD data.
Download Presentation Slides (PDF)
If you have questions or comments about these presentations, please use the button below to contact us.
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The 2023 Sarah Taub Memorial NCI Webinar
Aug 14th, 2023
You are invited to attend the 2023 Sarah Taub Memorial NCI Webinar on September 6th, 2023 from 3-4pm Eastern Time.
National Core Indicators (NCI) is the most comprehensive and representative source of data on the characteristics and outcomes of people with disabilities and older adults who use long-term services and supports (LTSS). In 2021-2022, NCI surveyed over 27,000 older adults and people with disabilities using long-term services and supports, as well as 27,502 family members and guardians of people with intellectual and developmental disabilities receiving state-funded services. This webinar will showcase the key findings about access to services, community inclusion and participation, health and wellness, rights and respect, and person-centered planning across the populations who participate in NCI. Discussion will explore trends in these outcomes across service users, including which outcomes are promising and in need of improvement, as well as outcomes that differ across populations. The findings shared in this webinar will improve understanding of where there are gaps in outcomes for service users and can inform LTSS policy and practice. Register today!