News

  • NCI-AD Team Presents Research at ASA's On Aging 2025 Conference

    Apr 29th, 2025

    The NCI-AD team recently presented two pieces of research with partners at the On Aging 2025 conference in Orlando, Florida, organized by American Society on Aging (ASA).

    On April 23rd, Senior Director Rosa Plasencia (ADvancing States) and Co-Director Stephanie Giordano (HSRI) joined Divya Venkataganesan from North Carolina's Department of Health and Human Services to present "Leveraging Lived Experience Data to Inform Multisector Plans for Aging." The session demonstrated how states can use NCI-AD data to incorporate the voices of people with lived experiences into their 10-year aging plans, enabling data-driven approaches that improve service delivery and outcomes for older adults.

    View Slides for Presentation 1

    The following day, Rosa Plasencia and Stephanie Giordano presented alongside Dr. Eric Jutkowitz from Brown University with "Understanding HCBS Quality from the Perspective of People with Dementia." This session examined data from recent NCI-AD Adult Consumer Surveys, exploring demographic trends and service quality experiences of Americans with Alzheimer's disease or other dementia diagnoses.

    View Slides for Presentation 2

    Both presentations underscored NCI-AD's commitment to using data to improve services and support for aging populations and people with disabilities.

  • National Core Indicators and Self-Direction: What do the data show?

    Apr 23rd, 2025

    This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.

    Read the Data Brief

  • ODESA 2.0

    Apr 2nd, 2025

    NCI is excited to announce the launch of the improved ODESA 2.0 platform this summer. 

    ODESA 2.0 will be used to collect and store NCI survey data.

    While the new system retains many features of the current data collection system, ODESA 2.0 will offer:   

    • A refreshed design
    • New features
    • Enhanced security

    This new platform will be used to collect and submit data for the following surveys in the 2025-26 data cycle:

    • NCI-AD Adult Consumer Survey
    • NCI-IDD In Person Survey (IPS) and
    • NCI-IDD family surveys (AFS, FGS, CFS)

    Stay tuned for more information on ODESA 2.0!

  • Sarah Taub 2025 Webinar

    Feb 4th, 2025

    The title slide of the 2025 Sarah Taub webinar

    The 2025 Sarah Taub Memorial NCI Webinar – Empowering Choice: Exploring Self-Direction Experience and Outcomes among National Core Indicators Respondents – was presented on January 29, 2025.

    National Core Indicators (NCI) is the most comprehensive and representative source of data on the characteristics and outcomes of people with disabilities and older adults who use long-term services and supports (LTSS). In 2022-2023, NCI surveyed over 40,000 older adults and people with disabilities using state-funded long-term services and supports. Our team was joined by panelists from Applied Self Direction and state partners to showcase data that explores choice and control, with a focus on self-direction data and the outcomes and experiences of those self-directing their services who participate in both the NCI-IDD and NCI-AD surveys.

    The findings shared in this webinar can improve understanding of where there are gaps in access to and quality of supports for self-direction, and can be used to inform LTSS policy and practice.

    Click on the links below to access recordings and additional resources from the webinar:

     

  • NCI-AD Team Presents at HCBS Conference 2023

    Sep 14th, 2023

    The NCI-AD team participated in several presentations at the HCBS conference including “So You Think You Can Stratify” about state sampling stratification strategies and “The HCBS Quality Measure Set: A Blueprint to Comply with the Access Rule & Raise Service Quality in Your State” on considerations around the Access Rule NPRM. A third presentation “Data to Innovate, Inform, and Influence: How States are Using NCI-AD for HCBS & DSW Policy and Planning” discussed ways to use NCI-AD data to support quality improvement initiatives, representatives from two states (ND and CO) discussed ways their states are currently using NCI-AD data.

    Download Presentation Slides (PDF)

    If you have questions or comments about these presentations, please use the button below to contact us.

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