News
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NCI-AD Team Presents at USAging Conference
Aug 7th, 2025The NCI-AD team recently presented data on the outcomes of older adults from the 2023-24 NCI-AD Adult Consumer Survey at the USAging Conference. "What do we want? Data! When do we want it? Now!" showcased data from National Core Indicators (NCI) on social isolation, community engagement and relationships for people with disabilities and older adults who use state-funded long-term services and supports (LTSS). The presenters described what NCI data shows about social connections among older adults, older adults with physical disabilities and older adults with intellectual and developmental disabilities relative to one another and their younger peers. The presenters also described what the data shows about how these social connection outcomes are connected to broader health and community living outcomes. The presenters discussed strategies for leveraging this data with various groups, including LTSS users and families, state policy makers and more.
Presentation slides available here
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NCI-AD Team Presents Research at ASA's On Aging 2025 Conference
Apr 29th, 2025The NCI-AD team recently presented two pieces of research with partners at the On Aging 2025 conference in Orlando, Florida, organized by American Society on Aging (ASA).
On April 23rd, Senior Director Rosa Plasencia (ADvancing States) and Co-Director Stephanie Giordano (HSRI) joined Divya Venkataganesan from North Carolina's Department of Health and Human Services to present "Leveraging Lived Experience Data to Inform Multisector Plans for Aging." The session demonstrated how states can use NCI-AD data to incorporate the voices of people with lived experiences into their 10-year aging plans, enabling data-driven approaches that improve service delivery and outcomes for older adults.
View Slides for Presentation 1
The following day, Rosa Plasencia and Stephanie Giordano presented alongside Dr. Eric Jutkowitz from Brown University with "Understanding HCBS Quality from the Perspective of People with Dementia." This session examined data from recent NCI-AD Adult Consumer Surveys, exploring demographic trends and service quality experiences of Americans with Alzheimer's disease or other dementia diagnoses.
View Slides for Presentation 2
Both presentations underscored NCI-AD's commitment to using data to improve services and support for aging populations and people with disabilities.
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National Core Indicators and Self-Direction: What do the data show?
Apr 23rd, 2025This brief examines data from National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) In-Person Survey (IPS) and National Core Indicators Aging and Disabilities (NCI-AD) Adult Consumer Survey (ACS) to shed light on the populations of people self-directing their supports and their experience of self-direction. These two self-direction data sets show that there are notable differences both among each survey population and between NCI-AD and NCI-IDD respondents. These include differences in demographics (e.g., diagnosis, race and ethnicity, level of disability) of those who use self-direction and differences in their experience of self-direction. The experiential differences also vary by personal characteristics, such as mode of communication and age. This brief concludes with recommendations for public managers as they consider how to expand service users’ access to self-direction.
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ODESA 2.0
Apr 2nd, 2025NCI is excited to announce the launch of the improved ODESA 2.0 platform this summer.
ODESA 2.0 will be used to collect and store NCI survey data.
While the new system retains many features of the current data collection system, ODESA 2.0 will offer:- A refreshed design
- New features
- Enhanced security
This new platform will be used to collect and submit data for the following surveys in the 2025-26 data cycle:
- NCI-AD Adult Consumer Survey
- NCI-IDD In Person Survey (IPS) and
- NCI-IDD family surveys (AFS, FGS, CFS)
Stay tuned for more information on ODESA 2.0!